Want to talk with others. Have you found relief from CRPS?

Have you tried Ketamine infusions?

Scrambler therapy did me wonders!!

Good for you! Focusing on what I CAN do instead of what I can no longer do also. I line up “projects” that I can do and try to retain the great memories of athletics I enjoyed throughout my life…my daily life remains full. My projects have to stay out so I can move from sewing to wood projects, cleaning to menu planning, and now I’m learning to knit 🧶 on Utube. Mostly to keep my mind focused on something besides pain. Stretching, strengthening and meditation throughout the day

Yes, The series of Ketamine helped me climb out of a deep depression years ago

There is a wonderful positive support group on Facebook Positivity Rsd/crps.org. I do Ketamine infusions and use the nasal spray in between boosters. The group has a nightly video. We go over books one chapter each night. The founder was in bed over 20 years. Amazing how she is now . We have a lot of fun and laugh. I have had 2 failed Spinal cord stimulators. They are great for some neuropathies, but never crps. I have type 2 from direct hit nerve damage. X husband caused it. The files in the group have loads of information. I have tried everything. The group saved my life. Hope you check it out. Your friend, Doreen

Thank you, hope to see you there!
Hugs, Wendy

Hey there,
My son is 42 and approximately 10 years ago. He broke the cuboid bone in his foot and it would not heal. It turned into CRPS.
We went to Emery and Atlanta with no good outcome whatsoever. He finally is seeing a foot Doctor Who has done some laser treatments, which really do help to calm it down when he has flareups. Most doctors don’t know about this condition or even how to treat it. When my son first was diagnosed with it, he did not walk for three months and was 32 years old and with a family and a great job. It has been a difficult journey to say the least, but the foot doctor that he found who is familiar with it has helped him tremendously. Unfortunately, it never goes away, but I understand that Mayo Clinic does have doctors that specialize in this condition. Wishing you the very best and I am so sorry. No one realizes how bad it is until you or a family member have it.

Not all Mayo campuses are the same. Mayo in Rochester knows how to treat this! It’s called a sympathetic block, and it doesn’t mean you want sympathy, it quiets the sympathetic nervous system that has a short circuit problem & doesn’t know it should shut off!
So the block is the test for CRPS & it’s also the treatment 🎉
After the block, my pale cold painful foot, turned pink and warm for the first time in years!
The next day, I walked to the test room, with 0 pain and no limping! It was like a miracle!
It lasted 6 months but I just went to get another block, that allowed me to get back to work & enjoy my life!
Afterward that one lasted 6 months about, Mayo sent an order to a local pain management anesthesiologist & he did the future blocks locally.
Which was a relief b/c Mayo was a flight away!
So there is hope & it’s worth the pilgrimage up there.
I saw 6 “experts” in my city & they hadn’t a clue what it was, why or what to do.
One even said I might be faking it! Oh I cried when I read that & the Mayo doctor said, sadly many ppl are told the same thing just b/c it’s just so rare.
But -It was first noted in the civil war, and was called Reflex Sympathetic Dystrophy ~ An injured soldier complained of searing foot pain but they didn’t even have a foot anymore!
I’ve learned with RSD or CRPS something goes haywire with the sympathetic nervous system after an injury & it just never shuts down the reverberating messages to the area, then you feel shocks, pain & coldness in the extremity!
Mine was pale bluish & cold. Again after the Sympathetic block, immediately my foot & ankle turned pink & warm and no pain! Temp went up 8 degrees immediately.
Good Luck.
There is Life after CRPS after you see ppl who truly know what it is & how to stop it -