Anyone have Pancreatic Acinar Cell Carcinoma?
I looking to see if anyone has been diagnosed with Acinar cell pancreas cancer. My biopsy from Dana Faber in Boston had my cancer type Neuroendocrine/Acinar. The Acinar cancer is very rare.
I was hoping to connect with someone that has experience with Acinar cell cancer of the pancreas.
Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
Unfortunately, I caught pneumonia last Fridat and I won't be able to make the trip to Bethesda for, I figure, at least two week. I've never had pneumonia before and I figure it's due to a compromised immune system due to my last chemo. It's really knocked me down, but I'll beat it. When I'm able to get to Bethesda, I'll post it here. Thanks you so much for your help, ma'am.
I cannot thank you enough, stageIV survivor for taking the time and effort to post your experience. If you don't mind me asking, do you have a daily exercise regimen? I continued to swim 1/2 mile every day during my 6 month chemo regimen except on days I was having the infusion. I believe that helped me handle the Folfirinox better than anything else.
During the 24 months of Folfirinox treatment, I walked between 3-5 miles. I worked all through my treatment requiring a daily roundtrip commute of 4 hours 20 minutes minimum. At work I walked the stairwell of 6-8 stories several times a day as well as walking up the escalators and stairs of the NYC subway and an 8 block walk part of my commute.
Just prior to my diagnosis, I was riding 50 mile segments for speed and endurance 2-4 mornings each week for a total of 100-200 miles/week.
Currently walk and ride my bike in nice weather. I have a stationary bike to ride in inclement weather. The exercise helped me in tolerating the aggressive amount of chemo and the duration of treatment of 2 years.
"The exercise helped me in tolerating the aggressive amount of chemo and the duration of treatment of 2 years." I have no doubt you're right about that, sir. My exercise routine had nothing but a positive effect on me during my chemo treatments. Thanks for your reply.