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Exciting Phase 2 Results from the ARINA-1 Trial!!

MAC & Bronchiectasis | Last Active: Oct 5 6:43am | Replies (24)
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@scoop

Curious if the nonprofit Bronchiectasis & NTM Info and Research is a patient registry? In other words, to join the site do they require you to register as a patient for access to medical records for search purposes?

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Replies to "Curious if the nonprofit Bronchiectasis & NTM Info and Research is a patient registry? In other..."
becleartoday | @becleartoday | May 5 4:46pm

No. It is a nonprofit. NTM info.org. Many institutions including the COPD Foundation and UT Tyler reference these support groups. Some groups meet in person and others are virtual. I learned a lot in my NYC group. Linda

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becleartoday | @becleartoday | May 5 4:48pm

You might be thinking of the COPD Foundation’s Bronchiectasis Research Registry. I participate in it through NYU.

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