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Have any of my other ETers had any problems with their feet? I am one for wrapping up at night and for the past few months I have had to have my feet out from under the blankets. They do not hurt but feel as though they are asleep without the pringly/pricklyl feeling. If I close my toes it feels like my feet are swollen but they are not. Last night they felt very hot on the inside. I see my hematologist Tuesday I will mention it to him but wanted to ask you guys first
Replies to "Have any of my other ETers had any problems with their feet? I am one for..."
Go figure! Just like you, I often flip off the covers from my feet. They feel hot and swollen from the inside, but "normal" when I touch them. Not hot. Not puffy. Just different.
I used to wear socks at night bc my feet were always cold, but not in the past couple of years which is coincidentally about the same time I was diagnosed. Sounds like another interesting relationship w/ET. I'll mention that one to my heme doc next visit.
It sounds like neuropathy in your feet but you need a neurologist to confirm it. I have had neuropathy in my feet years before I was diagnosed with ET.
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Yes, I have that. I fill my hot water bottle with cool water and put my feet on it under the covers. Keeping feet moisturized and using drugstore hydrocortisone cream on the prickles seems to help me. ET patients also seem to be associated with erythromelalgia. Would be interested in what your doc says!