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Has anyone heard of VEXAS syndrome?

Blood Cancers & Disorders | Last Active: Aug 29 3:42pm | Replies (44)
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@oldkarl

My Onco/haema-tologist refuses to admit that Vexas is real. Only one.I have more diseases and disorders than I can track. Vexas is not even the only cancer. Any good ideas for tracking meds and doctors and symptoms, especially when my ten MDs all disagree on what to do? I take about 60 meds per day. That is too much

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Replies to "My Onco/haema-tologist refuses to admit that Vexas is real. Only one.I have more diseases and disorders..."
Colleen Young, Connect Director | @colleenyoung | May 4 11:09am

Hi @oldkarl, living with multiple chronic and complex conditions is a full time job. Like I need to tell you that, right. But what a dilemna when your doctors don't agree on what to do.

I moved your question about tracking meds, doctors and symptoms to this existing discussion about VEXAS, where you're more likely to get helpful tips from others like @dpmcgeejr @mayo2290 @rjmctavish @bhadfield @anne8185.

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