@bigjohnscho
How many members on connect have you seen post a cure or even significant improvements?
But even if they did it doesn't guarantee you will receive the same results. Personally, I never bought into all the supplement, devices or clinic hype.
I also have epilepsy, neither neuropathy or epilepsy have a cure. I’ve acceped my diagnosis and there limitations and adjusted my lifestyle accordingly. I've had neuropathy for almost 40 years. As the condition progressed my pain eventually stopped, replaced by numbness and other complications. Looking back, the pain wasn't so bad after all.
Sadly many people choose to chase rainbows and end up disappointed and perpetuating the booming fraud market, making crooks richer.
Epilepsy medication has proven to be the most helpful. I have taken these horrible meds for nearly 60 years and none have helped my neuropathy and for 45 years didn't help my seizures either. However, my brother takes 3600 mg of gabapentin and it helps him some.
ALA as I understand it is more likely to help people with diabetic neuropathy. Supposedly it has something to do with insulin but ALA studies for other sufferers has shown little to no effect. Although, ALA given intravenously has a higher success rate.
If you choose to to shop on Amazon for a cure, think about this.
Research showed that in March 2019, there were 1.8 million new unverified reviews, with an average of 99.6% of them being 5-star reviews. Most of these reviews are from people paid to write them.
I hope you don't go broke searching for the elusive cure researchers all over the world have yet to find.
If start supplements, Id ask my doctor and pharmacist about them first.
You might want to check out The Peripheral Neuropathy site for potential treatment possibilities. https://www.foundationforpn.org/
IF IT SOUNDS TOO GOOD TO BE TRUE, IT PROBABLY IS.
Jake - You hit the nail on the head! Your point to talk with doctor and pharmacist is absolutely necessary to make sure any new supplements do not interfere with effectiveness of on-going meds. Ed
@bigjohnscho
How many members on connect have you seen post a cure or even significant improvements?
But even if they did it doesn't guarantee you will receive the same results. Personally, I never bought into all the supplement, devices or clinic hype.
I also have epilepsy, neither neuropathy or epilepsy have a cure. I’ve acceped my diagnosis and there limitations and adjusted my lifestyle accordingly. I've had neuropathy for almost 40 years. As the condition progressed my pain eventually stopped, replaced by numbness and other complications. Looking back, the pain wasn't so bad after all.
Sadly many people choose to chase rainbows and end up disappointed and perpetuating the booming fraud market, making crooks richer.
Epilepsy medication has proven to be the most helpful. I have taken these horrible meds for nearly 60 years and none have helped my neuropathy and for 45 years didn't help my seizures either. However, my brother takes 3600 mg of gabapentin and it helps him some.
ALA as I understand it is more likely to help people with diabetic neuropathy. Supposedly it has something to do with insulin but ALA studies for other sufferers has shown little to no effect. Although, ALA given intravenously has a higher success rate.
If you choose to to shop on Amazon for a cure, think about this.
Research showed that in March 2019, there were 1.8 million new unverified reviews, with an average of 99.6% of them being 5-star reviews. Most of these reviews are from people paid to write them.
I hope you don't go broke searching for the elusive cure researchers all over the world have yet to find.
If start supplements, Id ask my doctor and pharmacist about them first.
You might want to check out The Peripheral Neuropathy site for potential treatment possibilities. https://www.foundationforpn.org/
IF IT SOUNDS TOO GOOD TO BE TRUE, IT PROBABLY IS.
Surely some people have found something that has helped with this awful disease. It would be so encouraging to here from anyone who could offer hope. It would even help to hear about those who have tried so called cures that have failed, at least that would warn others not to waste their money. I for one cannot just give in.
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
Hi...I've had (non) diabetic neuropathy for 4 years now. I've seen multiple neurologists and have had a spinal stimulator implant done. That does help a little, but the only thing that keeps me going at all is taking 4 Oxcarbezapine a day and 2 Pregabulin at night.
Nonstop medication, but what else can I do? I endure.
God Bless!!
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
The ONLY way I can exist is taking 4 Oxcarbezeprine a day and 2 Pregabulin at night! I've also had a spinal stimulator implant done...it helps a little.
Ive found nothing else at all yet.
God Bless!
Surely some people have found something that has helped with this awful disease. It would be so encouraging to here from anyone who could offer hope. It would even help to hear about those who have tried so called cures that have failed, at least that would warn others not to waste their money. I for one cannot just give in.
I think the biggest problem is neuropathy is a symptom of something else and not a disease in and of itself. What works for one person won’t necessarily work for another. My symptoms are caused by inflammation and I seme-successfully controlled the pain with supplements that targeted inflammation, then when that was no longer enough added LDN to the supplements and got another 10 months. Now that combination is not enough (either my body has grown a tolerance to what I am taking or it is progressing) and I am back at the search for relief.
So if you want to try something, ask your doctor about LDN - it worked wonders for me for about a year, and did nothing for my father with type-2 diabetic neuropathy, so your mileage may vary.
The ONLY way I can exist is taking 4 Oxcarbezeprine a day and 2 Pregabulin at night! I've also had a spinal stimulator implant done...it helps a little.
Ive found nothing else at all yet.
God Bless!
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
I tried just about everything for my feet. The only thing that worked for me was a pair of open toe compression socks. After about a week my symptoms were gone.
I tried just about everything for my feet. The only thing that worked for me was a pair of open toe compression socks. After about a week my symptoms were gone.
Funny you mention compression socks. Something that made a big difference for me when neuropathy was slowing my recovery from a serious spinal injury was getting proper orthotics (aka arch supports) in my shoes. I was getting serious pain with each step as I transitioned from wheelchair to walker to cane, but it went away in a couple of weeks after I started with the orthotics.
Note that I'm talking about real, custom orthotics that need a doctor's prescription and cost hundreds of dollars, not the cheap Dr Scholl's stuff in the pharmacy.
I also started wearing prescription compression stockings, but they didn't make nearly so dramatic a difference in my case (they helped more with the slight ankle swelling from the blood thinners I take to control my DVT).
For my hands, I found that squeezing one of those spring exercise things every morning eventually made the pain in my fingers, hands, and wrists go mostly away. If that's too much, even a foam stress-ball might help.
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
I liken trying to find something that helps my neuropathy to playing whack a mole at a carnival. Sometimes it seems the target keeps moving. I’ve tried so many things it’s hard to keep track of them all.
I liken trying to find something that helps my neuropathy to playing whack a mole at a carnival. Sometimes it seems the target keeps moving. I’ve tried so many things it’s hard to keep track of them all.
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Jake - You hit the nail on the head! Your point to talk with doctor and pharmacist is absolutely necessary to make sure any new supplements do not interfere with effectiveness of on-going meds. Ed
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5 ReactionsSurely some people have found something that has helped with this awful disease. It would be so encouraging to here from anyone who could offer hope. It would even help to hear about those who have tried so called cures that have failed, at least that would warn others not to waste their money. I for one cannot just give in.
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Helpful -
Hug
6 ReactionsHi...I've had (non) diabetic neuropathy for 4 years now. I've seen multiple neurologists and have had a spinal stimulator implant done. That does help a little, but the only thing that keeps me going at all is taking 4 Oxcarbezapine a day and 2 Pregabulin at night.
Nonstop medication, but what else can I do? I endure.
God Bless!!
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Helpful -
Hug
5 ReactionsThe ONLY way I can exist is taking 4 Oxcarbezeprine a day and 2 Pregabulin at night! I've also had a spinal stimulator implant done...it helps a little.
Ive found nothing else at all yet.
God Bless!
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Like -
Helpful -
Hug
1 ReactionI think the biggest problem is neuropathy is a symptom of something else and not a disease in and of itself. What works for one person won’t necessarily work for another. My symptoms are caused by inflammation and I seme-successfully controlled the pain with supplements that targeted inflammation, then when that was no longer enough added LDN to the supplements and got another 10 months. Now that combination is not enough (either my body has grown a tolerance to what I am taking or it is progressing) and I am back at the search for relief.
So if you want to try something, ask your doctor about LDN - it worked wonders for me for about a year, and did nothing for my father with type-2 diabetic neuropathy, so your mileage may vary.
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Like -
Helpful -
Hug
8 ReactionsThanks for that, God Bless.
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2 ReactionsI tried just about everything for my feet. The only thing that worked for me was a pair of open toe compression socks. After about a week my symptoms were gone.
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Like -
Helpful -
Hug
10 ReactionsFunny you mention compression socks. Something that made a big difference for me when neuropathy was slowing my recovery from a serious spinal injury was getting proper orthotics (aka arch supports) in my shoes. I was getting serious pain with each step as I transitioned from wheelchair to walker to cane, but it went away in a couple of weeks after I started with the orthotics.
Note that I'm talking about real, custom orthotics that need a doctor's prescription and cost hundreds of dollars, not the cheap Dr Scholl's stuff in the pharmacy.
I also started wearing prescription compression stockings, but they didn't make nearly so dramatic a difference in my case (they helped more with the slight ankle swelling from the blood thinners I take to control my DVT).
For my hands, I found that squeezing one of those spring exercise things every morning eventually made the pain in my fingers, hands, and wrists go mostly away. If that's too much, even a foam stress-ball might help.
-
Like -
Helpful -
Hug
5 ReactionsI liken trying to find something that helps my neuropathy to playing whack a mole at a carnival. Sometimes it seems the target keeps moving. I’ve tried so many things it’s hard to keep track of them all.
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Helpful -
Hug
5 ReactionsHas anything you’ve tried helped.
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