← Return to Tapering off Lyrica gave me panic, nausea, extreme anxiety

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@tenacioustracey

Yes, thank you for answering my question.
I was on Lyrica/pregabalin and have been off of it for a week. I wanted to connect with others to learn about this drug. This is a mean drug. I have found alot of great info about what this drug does to your body once off of it. It causes a bunch of glutamate to storm your brain and depletes taurine. The glutamate storm may cause severe brain damage. There are liquid supplements that you can take to offset the damage. I really searched for the best that I could find. They are:
High amounts of vitamin C, magnesium taurine, to help with the taurine defecancy, vitamin D3 with K2 to help it get absorbed. When I fully understood the withdrawal symptoms I was horrified. This drug should be outlawed. I want to add that I am not a doctor so please do your own research. I am not giving medical advice. I was an Occupational Therapist and have enough savvy to know how to research, I just wish I did that before taking the pregabalin. I may try activated charcoal to take as an detoxifier because it is absorbed in the gut. I mentioned lyme disease because I have that. I have horrible headaches daily. I got an epidural in January and it took my pain away. Then I started pregabalin and my life have not been the same. I tried to get another epidural and it did not take. I know it was that I was not taking the drug anymore. Like so many on here the drug worked wonders for me for about 2 weeks and then it stopped. I had 60 pills given to me at 25mg and now only have 20 left. I am not going back on it and believe that through taking those supplements as mentioned they will help me. A component of withdrawal is an increase in pain etc...so for whomever is reading this I hope I have given some insight on what to do. I pray to Jesus Christ that I am returned to the person I was before taking this horrific drug. I took gabapentine and will try to get on a lower dose of that. I really only had one problem and that was horrible water retention. I am very blessed that I don't work. I would not be able to do so because of the demon of a drug pregabalin/lyrica is!!!!! I know very long, I bet you are already sleeping from reading this. I had a frank talk with my pharmacist about it because I was afraid of going into serotonin syndrome, very similar to a glutamate storm that happens in the brain when you get off it. I am married and have a wonderful husband who has been taking care of me. I am very grateful for him and for my faith. Reading the other posts on here freak me out, I can't believe that lyrica/pregabalin cause tooth/hair loss. What do you do for a living? Have a blessed day.
Tracey

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Replies to "Yes, thank you for answering my question. I was on Lyrica/pregabalin and have been off of..."

Hi Tracey, It is hard to read the stories of so many folks on Connect that are suffering and looking for answers. The best thing each of us can do is learn as much as we can about our conditions using whatever reliable resources we have available to help us become a better advocate for our health. It's great to hear you have a supportive husband along with your faith. It is something we all need.

Thank you for sharing the details of your journey with lyme disease. We have a niece with lyme disease and remember how difficult it was for her and her family prior to being diagnosed and trying to figure how to help. She is now a missionary and doing really well. I'm guessing you have already used the search feature on Connect. The tech team behind the scenes has done a fantastic job the past few years in beefing it up with additional function and features. I use it regularly when trying to locate discussions and members for specific conditions. You can find many discussions and member comments searching with "lyme" - https://connect.mayoclinic.org/search/?search=lyme++

To answer your question, I'm retired and fortunate enough to have retired twice from two long time jobs after serving in the Navy during the 60s. First career was with IBM (computer repair/maintenance and later as a technical writer). The second career was working for a local telephone company as their Internet helpdesk and computer guy. I found Mayo Clinic Connect while search for answers after being diagnosed with idiopathic small fiber peripheral neuropathy in 2016. I am blessed with the opportunity to volunteer with Connect which helps me give back to the community that helped me. I also owe everything to my bride of almost 59 years 🙃who provides me with attitude adjustments when they become necessary.
Hoping you have a blessed day also. Feel free to tag me using @johnbishop if you have any questions.
John