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Essential Thrombocythaemia

Blood Cancers & Disorders | Last Active: May 6 7:06am | Replies (19)

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@1995victoria

Also the Leukemia/Lymphoma have wonderful in-person conferences, so if you get on the email list, you will be notified if any conferences in your area. ET is one of the MPN (MyeloProliferative Neoplasm)......It is also important to have regular blood tests, because it can progress to a worse neoplasm/cancer, ET is considered a chronic cancer. All the best......

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Replies to "Also the Leukemia/Lymphoma have wonderful in-person conferences, so if you get on the email list, you..."

Recently diagnosed with ET with JAK2& in a few months of daily HU my platelet count has dropped into the normal range so I'm feeling hopeful, but I know there's a lot to learn. What kind of "worse neoplasm/cancer" might it progress to? What email list are you referring to & how do I get on it? Many thanks to all.