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CLL - Symptoms at Stage 0

Blood Cancers & Disorders | Last Active: May 6 7:12am | Replies (17)

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@loribmt

Hi @marytheresacll It’s been a couple of months since we spoke last. I think you were just beginning treatment with Acalabrutinib (Calquence) for your CLL. How are you feeling?

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Replies to "Hi @marytheresacll It’s been a couple of months since we spoke last. I think you were..."

Hi Lori,
I started the calquence on April 17th so have been on it just short of three weeks. I have had intermittent headaches and a few stomachaches but mild. Joint pain has increased. My biggest complaint is still fatique. I am staying away from the crowds as my body tries to eradicate the white blood cells. I continue to try and exercise and do some work in the garden but in both cases I do shorter amounts at one time and rest up usually with a nap in between.
Speaking of WBC I had blood taken five days into treatment and the count was higher. At two weeks bloodwork was done again and the count was even higher. I was told this is normal in some cases, that it could take up to seven weeks for WBC to reverse themselves.
Some good news is that the swollen lymph nodes in my neck and armpits and groin areas have almost returned to normal. Night sweats are on the decrease. I was told to take my temperature every day and it has been normal.
I do get my blood checked right at three weeks so I am hoping I see a decrease in the WBC count. Looking forward to feeling a bit more energetic. Will see how the doctor checkup goes on Wednesday and expect it to be very positive!
Thanks for checking in on me!