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Enchondroma, vs. Chondrosarcoma

Sarcoma | Last Active: May 22 2:49pm | Replies (11)

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@snowpea

Hi!

I am recently (March 2024) diagnosed with chondrosarcoma on my left lower pelvis. I had an MRI back in 2021 showing a lesion at the same spot, but was considered benign.

There were two times (in 3 years) that I thought I pulled my muscle at the back that it hurt when I walked. But it did not catch my attention. I had some sleep, and the next day I woke up, I was fine. So I never really looked into it, until this time, I thought I hurt my back again because we were moving. I went to the orthopedic for x-ray, and found out that it had became malignant.

I’m meeting with doctors at Mayo to discuss a plan for surgery. I’m quite concerned about my ability to walk after the surgery.

It’s difficult to find any type of information about chondrosarcoma online, and it’s hard to imagine what type of after care I will need.

I’m grateful for any sharing posted here. 🌷

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Replies to "Hi! I am recently (March 2024) diagnosed with chondrosarcoma on my left lower pelvis. I had..."

Hi @snowpea (love the username, by the way), I can imagine you're worried about surgery and how it might affect your mobility given it is in the lower pelvis. I'm tagging fellow members like @skullbasecancer4 @kathleenkin @ilovedaisies @jinna78 @ronib @mickeyambrose49 @acherf23hk @kyp1255 who also have experience with chondrosarcoma (not necessarily of the pelvis). They can share more about their experiences.

What did you learn about surgery and care you may need for recovery after speaking with Mayo doctors?

I had a sacral chondrosarcoma removed and also 3 nerves cut. I have a colostomy and also have to cath myself. I had 2 surgeries in one week and they were each 12 hours. Don't worry about not being able to walk, you will. My surgery was 6 months ago and I am walking with the help of a walker but I go to PT 2X a week and it helps A LOT! Don't skip out on PT, they are awesome! Don't be scared, I'm 57 yrs old and made it through and you will too. ❤️❤️❤️