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← Return to Trigeminal Neuralgia*
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Brain & Nervous System | Last Active: Sep 18 11:18am | Replies (317)
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It took 8 years for me to finally be diagnosed with SFN. 8 years of horrific nighttime neuropathy. The 10mcg Butrans patch worn 24/7 with Percocet stopped the nighttime neuralgia instantly. The pain I have in my left ear is still a daily problem. I believe it is caused by Trigeminal neuralgia not SFN. When the Trigeminal nerve shoots it shoots thru the ear into my mouth and down my throat. Botox injections are a must for TN.
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Thanks Krissy. That’s exactly what I feel In my right ear. The pain burns in my right ear, right side of tongue, and right side of throat. It makes speaking difficult when the pain is at its peak. But, the pain is also in other areas, including left leg, right arm. And there’s random muscle twitching, including constantly at rest in both calves.
I truly can’t understand it, and my docs can’t figure out the cause. Finally getting a small fiber neuropathy diagnosis is helpful, but it’s seems only a piece of the puzzle. And no one can tell me why this has been going on for 1 1/2 years. And there’s definitely a progression in how badly i feel.