Trigeminal Neuralgia*

Trying to figure out possible triggers that make this condition worse and things to improve it besides the med I take

Hi, @henricksonj - you'll note I merged your post with this one, "Trigeminal Neuralgia," so that you can meet others here talking about this condition as well as what might trigger making it worse and what may improve it.

@henricksonj - have you found anything yet that may be triggering worsening of your condition?

My triggers are: salty foods or any foods that cause swelling (I’m guessing my nerve gets squeezed), too much coffee, too much poor posture at the computer (and more so if it is accompanied by stress to meet deadlines), and lastly EXTREME stress is a trigger.

Such an important question. Not sure if my post (answer) went to the correct location.

@kim_o Yes it did. We have the same symptoms. Often referred to as Burning mouth syndrome. Thanks!

Hi, My mother had been suffering from Trigeminal neuralgia for 15 years. She undergone Microvascular decompression(MVD) surgery after doctors suggestion 2.5 years back. But she is having severe dizziness all the time. She undergone cranioplasty after that. Though she recovered from the facial pain she is still having dizziness and fatigue all the time. Please reply if someone faces same symptoms post operation.

@kim_o you can find @lauren123 and others talking about burning mouth syndrome (BMS) here:
> Groups > Just Want to Talk > burning mouth syndrome very severe https://connect.mayoclinic.org/discussion/burning-mouth-syndrome-very-severe/

I feel guilty in responding that except for some slight numbness or tingling I feel pretty good and that electric shock is gone. I had the MVD in Oct 2017 and according to my surgeon My nerve was moved to the front of my face and it took him over 5+hours to fix it. I can only suggest to find a surgeon that has a good track record and was trailed well. This surgery is not that old and there are surgeon that won't even touch it. I felt comfortable with my and still checked him out. He was not the first I checked out, so beware.

Hi, @carmelo1morrone - that is great to hear that your electric shock feeling is gone after your microvascular decompression (MVD) and you just have some slight numbness and tingling. sounds like a huge, complex surgery. Is the residual tingling being treated, or just left alone?

@deviraj, welcome to Mayo Clinic Connect. That is really unfortunate that after MVD and also cranioplasty your mother is still having dizziness and fatigue all the time. What is her doctor's plan to treat her from here?

@henricksonj - how are you feeling lately?

Hi everyone,
My name is Jenn and I pretty sure that I am about to be diagnosed with Peripheral Trigeminal Neuropathy. My understanding of it comes from the front seat after watching my mom suffer with it for years. She went undiagnosed for years until a doctor at the Mayo clinic diagnosed her. She tried multiple forms of treatment and nothing ever worked. She passed away at the 57 due to other medical complications, but she lived in pains for years before she passed. I have slowly been showing the signs for 6 years and after numerous dentist appointments to rule out an issue with root canals, and going to Endodontist to rule out the bad root canals, there is nothing left. All my symptoms match my mom's symptoms and it was just suggested that I call a Neurologist to start looking into the issues I ma having. Since I just walked this trail with my mom, I am familiar with many of the steps. However; I would love ot hear how others deal with the facial pain caused by this disorder.
Thanks in advance for reading my message and have a wonderful evening!
Namaste!
Jenn