← Return to MGUS Symptoms: What symptoms did you experience?

Discussion

MGUS Symptoms: What symptoms did you experience?

Blood Cancers & Disorders | Last Active: May 15 3:30pm | Replies (72)
Comment receiving replies
@rlhare

I do get routine blood work done. I have had the Nurse Practitioner for last 3 visits. I also requested the bone scan, since my teeth indicated some resorption, which the dentist said followed a pattern of MM. There are a couple suspect spots on calvarium from bone scan, but not on MRI. Does an mri only scan soft tissue?

Jump to this post

Replies to "I do get routine blood work done. I have had the Nurse Practitioner for last 3..."
Patty, Volunteer Mentor | @pmm | Apr 30 4:51pm

@rlhare
An MRI Picks up almost everything in the body. Bone, muscles…organs.
The only medical professional that I listen to regarding MGUS or multiple myeloma is my hematologist/oncologist. I certainly wish that professionals for whom this is not their expertise would temper their inclination to give diagnostic counsel.
We all fear that any time we feel bad, this is a possible symptom of multiple myeloma. That anxiety is the common denominator, but anxiety can also make us feel sick or sicker.
I had a couple of spots on my spine that they thought perhaps were lesions, but they turned out to be arthritis. That differentiation was made as the result of a CT scan.
It’s good that you’re advocating for yourself to get the testing that you need to reassure you or to figure out what’s going on so it can be treated.
I always try to keep in mind that the progress that has been made in treating multiple myeloma in the past decade has been phenomenal. So worst case scenario they’ll just have to fix me!
How long do you have to wait to see your Hem/Onc doc?

VIEW AND REPLY