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HCM Fatigue and Poor Sleep - What Can I Do?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jun 11 10:48am | Replies (16)
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@bestseller2025

I have been on 5mg of Camzyos for 6 days. I was always fatigued before and since taking Camzyos, I have not been able to sleep more than 3-4 hours per night. I wanted more energy, but I was not expecting this side effect. As a senior, I was always able to fall asleep quickly, though I would often awake for several hours during the night. Now, I am unable to fall asleep and when I am finally able to in the wee hours, I am only able to sleep for a few hours. Has anyone else experienced this as a side effect of taking Camzyos?

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Replies to "I have been on 5mg of Camzyos for 6 days. I was always fatigued before and..."
manuelpo | @manuelpo | May 1 10:18am

Same thing happened to me sleeping only 4 hours after starting 5 mg camzyos.
I am taking a shower in the afternoon that helps me relax then I take a nap in the afternoon for about 2 more hours which helps a lot.
My first echocardiogram showed the pressure in my heart when down from 195 mm Hg to only 12 mm Hg in only 3 weeks and a half. Since then that I saw that big progress, I am able to sleep now 6 to 6.5 hours per day and I still take a 1 hour nap in the afternoons. This is not fixing the problem but is helping.
In other words, trying to relax and not being worried about my severe HCM since camzyos is working really well is allowing me to sleep better now (not as much as I want but at least I can sleep 6 hours a day which is not too bad).
I hope this helps you. Try to relax and remain positive.

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