where did you get it done and by who and when. Those reply will give some insight as I was not going to just let anyone work on me. I did not hire the first surgeon, who I still call the snake oil salesman, I waited a few months just to see my surgeon and I knew it was worth the wait. I could tell he cares and it shows with his professional way his whole staff treats you, you'll know and I was right. My doctor did not make any promises and didn't sugar coat anything, but also explain everything the goods and the bads. I hope my life stays healthy, but if this returns I will have to address it when that happens. If it does, I would still seek my doctor I have today and get his feedback on what my choices are.

Anna I was wondering how you made out? I have not been around and check my e-mails rarely. I would like to update that I am living without any pain or medication. I have numbness on and off on the top and the side of my head. It feels funny but can live with that. I am done with doctors on TN and am living a normal life. I had my teeth done to look human again. I just came back from a traveling vacation along the east coast. I am going back to work June and never could believe that would happen. I am at peace and fill each day with doing something no matter what it is. When you have been where we were, all things are in your grasp. Regard Carmelo

Colleen I would like to post a reply to you the moderator. I was recently involved in my daughter's life, once again and helped her go through some dishearten news about her medical issues. I could not have helped her through being on all that emotional meds and be strong for her, she needed that from her dad. I am happy to say round one went very well and will deal with the second and hope the final round of her issues. I want people to know that you have to be your own advocate to get results that work for you and you alone. I am giving you that information to share with new and existing people that there is a light at the end of the tunnel, you have to seek it.

You are so right, @carmelo1morrone. It is important to advocate for yourself, or for a family member. Patients are the experts of their bodies and as such are a necessary part of the care team. I'm glad that you were able to help your daughter through this most recent bout of difficult times.