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MGUS Symptoms: What symptoms did you experience?
Blood Cancers & Disorders | Last Active: May 15 3:30pm | Replies (72)Comment receiving replies
I have MGUS and experiencing symptoms of fatigue. Also, tired after being up 2 hours. This came on gradually, since being asymptomatic for almost 20 years, unfortunately an early diagnosis. First symptoms, unbalanced visual feeling in my head. My Kappa number jumped 20 points in 4 months, now sitting at 67. My other blood panels are normal range. My question, what should I expect from my oncologist at my upcoming visit? I have requested my own tests with MRI/occular focus, bone scan, early blood work review. Does one just live with almost debilitating fatigue?
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@rlhare I echo the welcome to Mayo Clinic Connect. This is a great place to ask such questions and address your concerns! As @pmm Patty asked, what has your oncologist had to say about all this? Remember to advocate for yourself, and get those tests done. Discuss with your specialist their thoughts on how best to proceed now. MGUS can change quickly, or it can lie dormant for a long time, as it seems your case has done. Our bodies are marvelous machines, and we learn to accommodate slight changes without realizing it.
As for living with fatigue, most of us will have different answers to this. I do what I can, and have had a hard time learning to forgive myself when not able to accomplish what I thought could be done. Be gentle on yourself. Do you have family and/or friends nearby to help you?
Ginger