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Small Fiber Neuropathy

Neuropathy | Last Active: May 5 3:07pm | Replies (85)

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@cdianeb

I’m still reading about it. I don’t understand it completely and the internet doesn’t help much. I’ve bought about 15 pairs of shoes, compression socks and a foot massage machine and a foot spa that also massages. I just ordered some different brands of socks. I’d like to talk to someone who has it and find out how they handle it. I take Gabapentin and it helps but I still can’t be on my feet longer than 15 minutes without having to sit for a while. I’m 73 and still trying to accept that I can’t do things that I used to. Hope this helps and you feel better.

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Replies to "I’m still reading about it. I don’t understand it completely and the internet doesn’t help much...."

Hello @cdianeb, Welcome to Connect. You are right about the Internet not helping much. There are some reputable sites but there are many more not so good that jump up first in line on the searches. I see by your other post that you have alcohol induced neuropathy, there are some related discussions for neuropathy caused by alcohol that you might want to scan through. Here is a link to the search results on Connect - https://connect.mayoclinic.org/search/discussions/?search=alcohol%20and%20neuropathy.

If you are looking to learn more, check out the Foundation for Peripheral Neuropathy. Here are a couple of links to their site that might be helpful:
--- Living Well: https://www.foundationforpn.org/living-well/
--- Foundation for Peripheral Neuropathy YouTube Channel: https://www.youtube.com/@foundationforperipheralneu4122/search?query=alcohol

I don't have pain with my idiopathic small fiber PN but do have the numbness and some tingling. I shared my story in another discussion here - https://connect.mayoclinic.org/comment/310341/

Have you looked into any alternative or complementary therapies to help with the symptoms?