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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (808)

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@whidbey

I have improved greatly on 10 mg of Camzyos. I am labeled "severe" HCOM. My doctor wrote ,"impressive results" on my chart regarding Camzyos. I did not feel well when I first started the drug. A nurse practitioner adjusted my metoprolol which made the difference for me. I mention this in hopes that someone else will consider this if they are not feeling well initially on Camzyos. A few days ago, I began taking 15 mg to see if I can improve even more.

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Replies to "I have improved greatly on 10 mg of Camzyos. I am labeled "severe" HCOM. My doctor..."

natalierb | @natalierb | May 3 8:15am

Hi, I am considered a "severe" HCOM patient as well. My cardiologist is really wanting me to try this medicine too. Can you tell me how long you have been on it? Have you had any side effects? What symptoms did you have before the Camzyos? I am just very nervous to try something new.