← Return to Sepsis: What's your experience recovering from sepsis?

Discussion
Comment receiving replies
@katey122

@amylee1111 What abdominal surgeries have you had and what new surgeries are the doctors wanting to perform?
I also have PTSD from ICU. AND amnesia.

Jump to this post


Replies to "@amylee1111 What abdominal surgeries have you had and what new surgeries are the doctors wanting to..."

Thanks for responding. I had my first Nissan fundoplication with mesh implant, massive hiatal hernia repair, pyloroplasti when I was 15, within about a year surgery was completely undone, though no tests showed that somehow, so two years from the first they also found out I didn’t have a functions gallbladder so went in to do that surgery, and that’s when they saw that my prior surgery was completely undone so they redid everything and removed a lot of scar tissue. Two years later and I had to go through it again. Throughout this every time about a year after my pain and nausea came rushing back but at this point I wasn’t able to vomit so I had violent dry heaving, so much that I dry heaved my surgery apart in months and caused a pneumothorax and then sepsis and PE thanks to a PICC line and antibiotics also helped cause the dry heaving intensity’s. So back to surgery.. but that never held either… I finally got diagnosed with the connective tissue disease so we thought we knew from there why that was happening I had a good friend send a book to surgeon he had found on gi surgeries with connective tissue problems and so we thought we had a better plan this time. Surgeon found out I was having tears and getting free air from adhesions, I told him but he said that would have shown on a test but he finally caught that and that my entire stomach was in my chest on my heart. Since adhering my stomach to my back muscle didn’t keep it in place and ripped apart previously. So the last surgery, last chance I took with surgery repaired all that, lengthened my esophagus, added a peg tube to help adhere my stomach to abdominal wall and hours of scar tissue and adhesion removal and getting out all the bad meshes. It all lasted longer than the other but just at 2 years. My lung collapsed on the surgery table but they were planning on Removing ovaries due to pcos and appendix bc chronic appendicitis and since that couldn’t be done and now my other surgery being undone they want to fix all of that. So left with debilitating pain and nausea, among other things and can hardly function. But with every other factor added to it, I don’t know and they can’t convince me it’s a good enough reason to risk it… I don’t want to go into the hospital and never leave.. or leave but just right back to this facade of life. So despite the risks of my heart being overworked from the stress my stomach is putting on it, and random adhesion tears and the danger that poses I’m stuck between a rock and a hard place. That’s the shortest most direct answer to the meat of it. Can I ask what all happened to you?