1. < Liver Cancer

Diagnosed with HCC in a non-cirrhotic chronic Hep B liver

Posted by danieldani @danieldani, Apr 25 5:55am

Hi everyone,

I'm happy I found these support groups. I find already support in reading all of your experiences in this journey.

I am 41 years old and I have been diagnosed with HCC now for a month (one single lesion of 6,5x5 in section 4B/5 with no metastases) I am struggling a lot with the acceptance of it. Also I have no symptoms.

The doctors are discussing resection or liver transplant and they want to discuss this with me tomorrow. I don't really know what to think of these two options but we'll see.

I am trying to make the situation (mentally and physically) around the HCC as good as possible.

I am open for any tips that I could benefit from.

Stay strong everybody!

Daniel

Interested in more discussions like this? Go to the Liver Cancer Support Group.

danieldani | @danieldani | Apr 29 8:36am
In reply to @parrot53 "Tired most of the time, but no ascites,edema, itchiness, etc. I still do have issues with..." + (show)
@parrot53

Tired most of the time, but no ascites,edema, itchiness, etc.
I still do have issues with sleeplessness. I also have portal hypertension. But basically, I am good. Blood work is good, no HE or mild if it is HE. I did have esophageal varices but since taking Carvedilol according to last endoscopy they had cleared. I consider myself very fortunate. I am wishing the same for you. It was a shock for me to hear I might need a transplant. Will your doc do further testing to determine the best treatment? Are you at a teaching hospital? It is a journey for sure. I just take it each day one at a time when I get stressed.

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Good to hear you are good. The doc wants to to endoscopy to exclude any mestasis they could not see on the MRI. Not looking foward to this but I just let it happen and try not to think about it too much.

REPLY
Lynne Marie | @lbrockme | Apr 30 5:48pm

That's my philosophy too! Focus on other things that are happier! Until its time to do it.
I've had endoscopy as well and the worst part for me, is getting an iv .
I'm hoping yours goes smoothly!

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Moderator
Colleen Young, Connect Director | @colleenyoung | May 8 5:00pm
In reply to @danieldani "Thank you for your support! I had my appointment today and the doctor said he wants..." + (show)
@danieldani

Thank you for your support!

I had my appointment today and the doctor said he wants to start surgery within 4 weeks through micro-invasive or via open surgery. They are a little bit worried though because my AFP levels are extremely high. They want to do an endoscopy first to double check if I don't have metastasis that they could not see on the MRI/CT.

I am happy that I'm eligble for resection but also a bit worried for the chance of recurrence due to the high AFP levels. I started last week with a medicin called 'Tenoforvir' to reduce my HBV DNA levels and it could lower the AFP levels.

Fingers crossed and have a good weekend,

Daniel

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@danieldani, I thought I'd check in. How are you doing? Do you have a date for surgery?

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1 reply
danieldani | @danieldani | May 10 9:24am
In reply to @colleenyoung "@danieldani, I thought I'd check in. How are you doing? Do you have a date for..." + (show)
@colleenyoung

@danieldani, I thought I'd check in. How are you doing? Do you have a date for surgery?

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Hi Colleen, thanks for asking! I have a few updates. So the endoscopy was canceled and the wnet for another CT scan last Wednesday and I just got the results. Not much has changed, it has grown for 2mm but this could also be within the variability of the scan.

My date for surgery will be Friday 24th (2 weeks from now) It will be probably an minimally invasive surgery and if not possible they will do an open surgery.

I am doing as much as I can do prepare myself mentally and physically for the surgery!

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3 replies
parrot53 | @parrot53 | May 11 5:20am
In reply to @danieldani "Hi Colleen, thanks for asking! I have a few updates. So the endoscopy was canceled and..." + (show)
@danieldani

Hi Colleen, thanks for asking! I have a few updates. So the endoscopy was canceled and the wnet for another CT scan last Wednesday and I just got the results. Not much has changed, it has grown for 2mm but this could also be within the variability of the scan.

My date for surgery will be Friday 24th (2 weeks from now) It will be probably an minimally invasive surgery and if not possible they will do an open surgery.

I am doing as much as I can do prepare myself mentally and physically for the surgery!

Jump to this post

Hello Again Daniel,
So glad to hear you are going to get your HCC removed. Wishing you the very best outcome.

REPLY
revjohnson | @revjohnson | Jun 12 12:07pm
In reply to @danieldani "Thank you for the support and yes I have a good support system around me where..." + (show)
@danieldani

Thank you for the support and yes I have a good support system around me where I can talk to. It is different though when I speak to my surroundings compared to support groups like this one. Here everyone understands 100% what you are going through when diagnosed with cancer. Sometimes the waiting and uncertainty can be challenging, I can't wait to go into surgery and fight this cancer.

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Hi Daniel. I hope you are doing well and looking forward to a successful surgery. It is a blessing to have the options you mentioned. God bless you. I will be praying for you.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Nov 5 6:25am
In reply to @danieldani "Hi Colleen, thanks for asking! I have a few updates. So the endoscopy was canceled and..." + (show)
@danieldani

Hi Colleen, thanks for asking! I have a few updates. So the endoscopy was canceled and the wnet for another CT scan last Wednesday and I just got the results. Not much has changed, it has grown for 2mm but this could also be within the variability of the scan.

My date for surgery will be Friday 24th (2 weeks from now) It will be probably an minimally invasive surgery and if not possible they will do an open surgery.

I am doing as much as I can do prepare myself mentally and physically for the surgery!

Jump to this post

Hello @danieldani

As it has been a while since your last post, I was wondering how you are doing. Will you post an update?

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Nov 13 3:16pm
In reply to @danieldani "Hi Colleen, thanks for asking! I have a few updates. So the endoscopy was canceled and..." + (show)
@danieldani

Hi Colleen, thanks for asking! I have a few updates. So the endoscopy was canceled and the wnet for another CT scan last Wednesday and I just got the results. Not much has changed, it has grown for 2mm but this could also be within the variability of the scan.

My date for surgery will be Friday 24th (2 weeks from now) It will be probably an minimally invasive surgery and if not possible they will do an open surgery.

I am doing as much as I can do prepare myself mentally and physically for the surgery!

Jump to this post

Hello @danieldani

Earlier this year you posted that you were having surgery. I was wondering how you were doing post-surgery.

Will you post an update when it's convenient for you?

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