1. < Women's Health

Endometriosis research

Posted by freckle1 @freckle1, Apr 15 2:48am

My 12 year old granddaughter started her periods about 6 months ago. So far so good. But her mother is worried because many of the women in her husband's family have endometriosis. Apparently it can be inherited down the male line, which was news to me. Anyone aware of research on this?

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Mentor
Laurie, Volunteer Mentor | @roch | Apr 15 7:06am

@freckle1
I had not heard of a genetic / inherited component of endometriosis. But did quick google search showed studies are being done to see if genetic.

I developed endometriosis in my teens but my 3 sisters never had a problem.
I would just watch for symptoms; excessive menstrual cramps, abnormal or heavy menstrual flow. If she shows any symptoms, check with her provider or have her see a gynecologist.

REPLY
2 replies
freckle1 | @freckle1 | Apr 15 3:43pm
In reply to @roch "@freckle1 I had not heard of a genetic / inherited component of endometriosis. But did quick..." + (show)
@roch

@freckle1
I had not heard of a genetic / inherited component of endometriosis. But did quick google search showed studies are being done to see if genetic.

I developed endometriosis in my teens but my 3 sisters never had a problem.
I would just watch for symptoms; excessive menstrual cramps, abnormal or heavy menstrual flow. If she shows any symptoms, check with her provider or have her see a gynecologist.

Jump to this post

There's a lot of research going on in Australia now, since 1 in 9 women have it. Some say 1 in 7. Helps to have female leaders too! The recently retired premier of this state has it, and was unable to have children.

REPLY
janvelayas | @janvelayas | Apr 28 3:53pm
In reply to @roch "@freckle1 I had not heard of a genetic / inherited component of endometriosis. But did quick..." + (show)
@roch

@freckle1
I had not heard of a genetic / inherited component of endometriosis. But did quick google search showed studies are being done to see if genetic.

I developed endometriosis in my teens but my 3 sisters never had a problem.
I would just watch for symptoms; excessive menstrual cramps, abnormal or heavy menstrual flow. If she shows any symptoms, check with her provider or have her see a gynecologist.

Jump to this post

A gynecologist has very little training in Endometriosis treatment, and it's it's important to find an excision specialist in your area or beyond. Endofound.com can give you up to date information.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 29 7:33am
In reply to @janvelayas "A gynecologist has very little training in Endometriosis treatment, and it's it's important to find an..." + (show)
@janvelayas

A gynecologist has very little training in Endometriosis treatment, and it's it's important to find an excision specialist in your area or beyond. Endofound.com can give you up to date information.

Jump to this post

Good tip, @janvelayas
I believe you are referring to the Endometriosis Foundation of America (EndoFound)
https://www.endofound.org/
I particularly like this helpful page about preparing to see a doctor for endometriosis.
https://www.endofound.org/preparing-to-see-a-doctor
@janvelayas, can you share a bit more about your journey with endo? What did it mean for you to find the right provider?

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