Hi my son has been getting transfusions since age of 3 and started on chelator at the time it was deserol, which was sub q, at age 5, he is now 38, still getting transfusions every3 weeks and using jadenu, to get rid of extra iron, my husband and I are carriers of the thalassemia gene and didn't know about it when we had our son, but no one else in my family has the disease form of it, I hear there's gene therapy now but it takes a lot of time to recover my son is not wanting to to this at this time he may also be to old to have a good outcome.