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High Factor VIII (8) Blood Clotting Disorder and its Impacts on life
Blood Cancers & Disorders | Last Active: Apr 27 9:27am | Replies (125)Comment receiving replies
I’m sorry to hear this.
Currently I am waiting my next apt to see where I am at. My lower left leg is constant pain. And last Dr visit was good but unclear of what’s going on. I was informed possibility of another specialist.
Stay strong and stay positive always. Thank you for your reply. It truly helps.
I keep my hopes up and pray daily for advancements in blood related illnesses.
Replies to "I’m sorry to hear this. Currently I am waiting my next apt to see where I..."
Omg. I reread she had a pe 13 years ago too. Her viii went in remission and came back with a vengeance. The research is so poor. Oh I forgot to say she is Coumadin, eliquis, xarelto resistant. She has been on lovenox for a year now. Doesn’t work either obviously.
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Omg. Finally someone!! TY. Actually I am mom advocating for my daughter who has it she is 46 too!! U fortunately things are worse. Her count is 700. Nothing is stopping it. She has clots in her left leg and she has been in so much pain. She is getting a left leg amputation on Monday. We r devastated I’m sorry you have it too. I’d rather have her alive but she feels otherwise. She has 2 boys and a granddaughter to live for. Please text me directly at any time. I am losing my mind right now. She is at the Cleveland clinic. Surgeon said the Dr thst did her past thrombectomy ruined her arteries and veins. Can’t save her leg. 😢😢😢. God bless thank you again