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← Return to Taking supplements with ET
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Interesting topic. I've not been posting for a while. My MF, MDS made a major turn for the better several months back, and I've just been enjoying life to the fullest while it last. My Dermatologist has been pushing me to use something called METANX. Tells me that it has no bad effects and will help with the tingling in my feet. Humm? I've not even taken the samples she gave me. First off, I'm afraid to "Rock the Boat" by taking anything not specifically prescribed by my Oncologist, and the other reason is that even though it requires a prescription, it is not covered by either my BCBS or Medicare. I'll of course ask at my next appointment, but my appointments went from once a week to about every 6 weeks. Yep... things are really looking good. My numbers are better than they have been in 10 years. It all started when they stopped the Dacogen treatments because all CBS counts has fallen so low. With a couple weeks things started going up and they have not stopped. Yeah! Any how... is ANYONE taking this METANX stuff?
Replies to "Interesting topic. I've not been posting for a while. My MF, MDS made a major turn..."
An online search said this “Metanx Adverse Reactions Acne, skin reactions, allergic reactions, photosensitivity, nausea, vomiting, abdominal pain, loss of appetite, increased LFTs, ...”
Yea, good idea to check with your oncologist before rocking the boat!
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Glad you are feeling so well! It's great to get a stretch of good days, isn't it?
As I understand it, Metanx is a mega-dose of B vitamin used for diabetics. My husband has prediabetes, and he looked into it.
I don't know if MPN neuropathy works the same as diabetic. Probably good to ask the oncologist.
I use hydrocortisone cream from the drug store on my feet when I get prickles. I have ET, and I know discomfort from MF is worse and more constant.