@cax75 Hi Caryn, how grateful you must have been, not for the diagnosis of IPN, but for finally being able to have a firm diagnosis. It's never a pleasant experience to be wondering, searching, and testing, just trying to get clarity on what may be causing symptoms.

Yep, the standard first line of treatment is typically nerve medication like Lyrica or Gabapentin. Sorry that you had a poor experience with Lyrica. We're all so uniquely different that even with the same diagnosis, medications may work differently for each of us, or not at all. Sort of like how a skin punch biopsy proved my small fiber neuropathy, but you required a different location for biopsy to diagnose IPN. It's great to be well-rounded with information and hear out others experiences, but ultimately draw our own conclusions based on our personal experiences.

I've heard a lot of folks talk about Crocs being comfortable footwear for neuropathy. My father has diabetic neuropathy and wears fur lined Crocs in the winter and regular in the summer. Outside of Crocs, do you have any other tips or pain management tools that have helped you along your 15 year neuropathy journey?

Really great meeting you! ☺