The Burden of Getting Medical Care Can Exhaust Older Patients

I took Levaquin after C-diff.

I am 82 and have a rare disease diagnosed at age 65 when I had chronic hives for a year. It's called CVID or common variable immunodepression or "boy in the bubble disease". I have to do infusions of IgG blood plasma from other people to get their antibodies because my body doesn't make it's own. I see a clinical immunologist which is a specialist in the allergy immunology community. Most other doctors have never heard of what I have. I could show up at the ER very sick but no fever because my body doesn't fight like a normal person and they send you home because you're not sick. The other thing I've just discovered is that Medicare doesn't cover any new drugs. We have the most expensive Medicare and AARP insurance and I didn't realize that it only covers either generic drugs or drugs that have been in the market for years. I have suffered with migraine for years but they don't cover the new preventive drugs so I'm stuck with the same old triptans that have been on the market for 30 years. Thank goodness my grandson that inherited my migraine has private insurance and he can do the once a month injections that keep the migraines away. The same drug for me is over $1000.00 a month. Also if you have Medicare you can't use any coupon that the drug company gives to get a better price.