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Hi, I too have been to many different doctors including pain management centers and have had varying treatments including acupuncture light therapy, various patches, Eastern medicine, and have been seen by neurologists as well as pain specialists acupuncturists and lastly podiatrists. The podiatrist found that it was small fiber neuropathy idiopathic by doing a biopsy about 1 in square above my ankle on the inner side of my left foot. I mention that because she was the first one to do a successful biopsy. She said that the measurements were standards. I had had a punch biopsy which was not good for anything.
I am surprised you have not mentioned the supposed gold standards for neuropathy being gabapentin and Lyrica. I tried Lyrica once and had anaphylaxis. No more for me. I have read good and bad about both you decide. Good luck with your neuropathy mine started as heat and pain in the soles of my feet. It then progressed to pins and needles then to night pain twitching during the night having my toes curl feeling pain not feeling my toes and so on. Now I wear the most comfortable shoe I can find for me which is a crock.
I wish all of you IPN people lots of luck. My neuropathy has been with me for over 15 years.
Caryn
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@cax75 Hi Caryn, how grateful you must have been, not for the diagnosis of IPN, but for finally being able to have a firm diagnosis. It's never a pleasant experience to be wondering, searching, and testing, just trying to get clarity on what may be causing symptoms.
Yep, the standard first line of treatment is typically nerve medication like Lyrica or Gabapentin. Sorry that you had a poor experience with Lyrica. We're all so uniquely different that even with the same diagnosis, medications may work differently for each of us, or not at all. Sort of like how a skin punch biopsy proved my small fiber neuropathy, but you required a different location for biopsy to diagnose IPN. It's great to be well-rounded with information and hear out others experiences, but ultimately draw our own conclusions based on our personal experiences.
I've heard a lot of folks talk about Crocs being comfortable footwear for neuropathy. My father has diabetic neuropathy and wears fur lined Crocs in the winter and regular in the summer. Outside of Crocs, do you have any other tips or pain management tools that have helped you along your 15 year neuropathy journey?
Really great meeting you! ☺