Hmm. A bone marrow biopsy is usually the gold standard for ET diagnosis. I wonder if asking these questions would help:
Do I have essential thrombocytosis?
If the answer is yes, ask: What are the treatment goals and what will you try if the hydroxyurea doesn't work?
If the answer is no or I don't know, ask: Would consulting with another hematologist be of help?
I have found that asking questions where the doc has to give you yes/no/I don't know answers prevents them from giving you a bunch of doc-speak answers that leave you confused about what's going on.
Do you have someone going with you to the doctor who can take notes? Sometimes that helps.
If you have a GP, I'd say that telling him or her that you are not getting answers from the hemo and want a secondary referral would be one way you could go.
Thank you I have contacted my primary care doctor . I have thought about another hemo.
You have been so helpful . I just feel like enough is not being done to find the primary cause.
Have a blessed day