← Return to MGUS Symptoms: What symptoms did you experience?

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@pmm

@sportedgee
You’ve certainly had a lot to deal with medically over a short period of time. It’s always hard to tell if symptoms are related to MGUS or to coexisting health problems. With A prostatectomy, there are hormonal changes and 75% of the men who have had the surgery get what I relate to as hot flashes. Go figure. https://www.cancer.net/coping-with-cancer/physical-emotional-and-social-effects-cancer/managing-physical-side-effects/hormone-deprivation-symptoms-men#:~:text=Up%20to%2075%25%20of%20men,as%20gabapentin%20(Gralise%2C%20Neurontin)
But we also know that night sweats can be associated with hematological cancers. So how does one know?
I’m sorry that your hematologist/oncologist is leaving. I always encourage people to find a hem/onc expert who is very experienced with multiple myeloma. There may be a local teaching hospital or cancer treatment facility close to you. That would be a good resource. I looked for someone who takes, his or her time with me and answers all my questions. I want to be on the same page in terms of being as proactive as possible with my MGUS. We don’t have cancer with MGUS, and the statistics are in our favor that we will die of something unrelated, but we do have the potential.
Where will you start your search for another treating physician?

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Replies to "@sportedgee You’ve certainly had a lot to deal with medically over a short period of time...."

Patty,
My Hema/Ocologist is in a Cancer Center, so I will see someone he knows has MGUS experience; if not I live w/ 2 hrs of Johns Hopkins and will get a referral to there. I just met w/ my GP and when I told him of MGUS he made the statement "Well that's not a problem as it has no symptoms." I quickly corrected him on what the Mayo Clinic lists, as well as Johns Hopkins and he quickly took a back seat & said we will just stay w/ the normal stuff and let the Hema/Oncologist handle the rest.
I have had a Nutritionist friend advise of getting a complete hormone analysis to see what may have happened during the Prostate Cancer stage. No one really knows how long I had the cancer as I had NO symptoms. So the analysis is definitely on the plan to get it checked.
Thanks for all your help and suggestions. I am definitely trying to catch up on items that could possibly be linked to what has been going on. I will meet w/ the leaving Hema/Oncologist in 2 wks and have a list of questions to get answers before he passes me off.
Thanks again.