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Anyone diagnosed with Phyllodes tumor?

Cancer | Last Active: Oct 7 3:59pm | Replies (66)
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@yellowdoggirl1

My 32 y.o. daughter had a mastectomy in Oct. 2023 due to a malignant phyllodes tumor. Will have scan/ ultrasound every 6 months for the future. I'm terrified it will recur.
Are these things true: Is that most likely in the first 2-3 years?
Chemo is not effective on this type of cancer?

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Replies to "My 32 y.o. daughter had a mastectomy in Oct. 2023 due to a malignant phyllodes tumor...."
Colleen Young, Connect Director | @colleenyoung | May 3 4:27pm

@yellowdoggirl1, I can imagine you're worried about your daughter. Please let her know that there is also a Young Adults Cancer support group here: https://connect.mayoclinic.org/group/adolescent-young-adult-aya-cancer/

First treatment is always surgery. Sometimes, radiation may be offered after surgery. "Cancerous phyllodes tumors don’t usually respond well to common breast cancer treatments, such as hormonal therapy and chemotherapy. Still, if the phyllodes tumor has spread to other parts of the body, you’ll usually be treated with chemotherapy." https://www.breastcancer.org/types/cancerous-phyllodes-tumors

It is common for patients with phyllodes of the breast to have frequent follow-up, which your daughter is having with an appointment every 6 months.

Have you been able to accompany her on her appointments to have your questions answered? How are you doing?

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