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← Return to NET not found on PET/CT
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Neuroendocrine Tumors (NETs) | Last Active: May 4 9:38pm | Replies (14)
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Thank you,,,, l called Dana Farber, Boston for second opinion. Will see May 10th.
I do not understand how do many NETS are not found anywhere, with the high tech 68D pet/scan!
My lungs lite up, but my liver nothing showed only a "mean liver," SUV. 9 .96. My specialists blew it off, it might not be your liver, the uptake is pointing too!
Frustrating!
Replies to "Thank you,,,, l called Dana Farber, Boston for second opinion. Will see May 10th. I do..."
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My wife has a multi-disciplinary team with a NET Specialist, and even after all the treatment she has received in 2 years. We are getting a 2nd and 3rd opinion from Mayo in Rochester and Dr Liu in Denver. Our next step is a possible Liver Transplant which we aren’t sure if now is the right time hence our search for more opinions. The goal is to get as much information to make the best possible decision in your case. Every case is different, the key is to get that information so you’re confident in your treatment. You got this, we all got this!