← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

Discussion
Comment receiving replies
@katiekins

Goodness me such a quick reply...thank you. So young then...Ok I understand a bit more now. I think the surgeon wants to minimally cut down the middle to repair the mitral valve as well which may or may not need doing. I suggested doing the thickening first (round 1.6/1.7 mm to which he said if the mitral valve needs doing too we will have to go in twice. I am on verapamil 80mgs at night and 40mgs am plus 3 mgs prednisolone for aches. What are you on if any? I am getting out of breath after eating and better on after lunchtime. How about you? Sorry for all the questions a big decision coming.

Jump to this post


Replies to "Goodness me such a quick reply...thank you. So young then...Ok I understand a bit more now...."

I'm not taking any medication currently except high blood pressure medication. I am scheduled for an Echo. And then soon to go on camzyos. My situation is not as severe as yours, but will progress. I am considering surgery If it's done with robotics.

Hi - my doctor just suggested we try verapamil and if not tolerated then go on to Camzyos. Two questions - how well do you tolerate the verapamil? Side effect? Also, I think that verapamil treats only symptoms while Camzyos does do some reduction of the obstruction - perhaps permanentely? Is that your understanding?