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Chronic Pain | Last Active: Apr 25 10:29am | Replies (8)
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I’m so glad you’re interested in it. I have been taking 75mg twice daily (150 daily). I’m going to take 200 daily as of now because shooting pains and burning on movement remains. That makes 100mg, morning and afternoon.
I had to ask for it. I have to check in with the psychologist who I talked to about it. They can prescribe it because they can use it for psy. Conditions. Pain management doesn’t know sh— about post stroke central pain!
Good luck! Q: did you have a stroke?
Replies to "I’m so glad you’re interested in it. I have been taking 75mg twice daily (150 daily)...."
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Yes, 10 years ago. Right side affected. CRPS started about a year after the stroke. It gradually moved ito the right side of my face a couple of years ago. If you can tolerate 200 mg a day, that should keep you very comfortable. I take 25 mg Lamotrigine twice a day. It helps some but I found that when I built up to 100 mg a day it was helping a lot with the pain but was also causing a reaction (itching) so I backed off to the dosage I take now. There was a trial several years ago which showed Lamotrigine to be very effective for CRPS at the 200 mg level. You are lucky that you found out about it. It is off label for CRPS and maybe that is why doctors don't prescribe it. You are right about the pain...most doctors are no help at all. It's like they never heard of it and have no interest in finding out. They just nod sympathetically (sort of) and prescribe gabapentin and a host of others which just knocked me out.