BCG Side Effects: my toughest side effect is lower back pain

Posted by jcold5619 @jcold5619, Apr 14 8:21am

I’m currently in my 5th week of BCG treatment. I’m experiencing numerous side effects, which I was expecting, and a few that I wasn’t.

Presently my toughest side effect to deal with is lower back pain. Prior to starting on the BCG treatment plan I didn’t have any issues dealing with my back.

I’m at the point now where it is almost impossible to do anything without experiencing tremendous pain.

Is this fairly common?

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jcold5619 | @jcold5619 | Apr 16 5:27pm

In reply to @vickyhay "During the induction, you should be getting the full dosage, this is the most critical phase...." + (show)

Great input.

What amount constitutes a “full” dose?

vickyhay | @vickyhay | Apr 17 2:51pm

In reply to @jcold5619 "Great input. What amount constitutes a “full” dose?" + (show)

Having the full BCG vial ... in contrast to 1/2 or even 1/3 of it.

jcold5619 | @jcold5619 | Apr 17 3:28pm

In reply to @vickyhay "Having the full BCG vial ... in contrast to 1/2 or even 1/3 of it." + (show)

Thanks Vicky,

I need to find out.

The room has always been set up and ready to go when I arrive. I always see the box for the BCG and the syringe, which has already been filled. Not sure though if the entire vile was used or not.

I just assumed they were giving me what was needed.

Hmmm

vickyhay | @vickyhay | Apr 17 5:44pm

In reply to @jcold5619 "Thanks Vicky, I need to find out. The room has always been set up and ready..." + (show)

I can assure you that with the BCG shortage, they would not waste any of the solution.

jcold5619 | @jcold5619 | Apr 23 8:17am

In reply to @vickyhay "I can assure you that with the BCG shortage, they would not waste any of the..." + (show)

Had my 6th treatment yesterday. It was a wonderful afternoon and evening. Lol. The cumulative effect of this last 6 weeks is taking a toll. But I made it.

Found out I have been getting a full vile every week.

Now for a 7 week break before a cystocopy.

Colleen Young, Connect Director | @colleenyoung | Apr 30 3:35pm

In reply to @jcold5619 "Had my 6th treatment yesterday. It was a wonderful afternoon and evening. Lol. The cumulative effect..." + (show)

Enjoy the break, @jcold5619. How is the recuperation going from the 6 treatments? How are you feeling today?

jcold5619 | @jcold5619 | Apr 30 5:33pm

In reply to @colleenyoung "Enjoy the break, @jcold5619. How is the recuperation going from the 6 treatments? How are you..." + (show)

Thanks. Honestly not quite as well as I was hoping for. Could be I was hoping for to much but numerous side effects are still with me.

Fatigue is still strong along with joint and back pain. Nauseous feeling is pretty much gone.

Hopefully I see more changes in the weeks to come.

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