1. < Osteoporosis & Bone Health

Osteoporosis and Forteo (teriparatide): What to hear experiences

Posted by ans @ans, Feb 16, 2023

Wanting to hear people’s experience with using Forteo generally , good and bad. Concerned about having to travel and keeping it at the 36-46F range. Also would like to hear from those that used it 15-20 years ago and if any medical issues have come about that are related to Forteo.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

lynn59 | @lynn59 | Apr 22 7:14am
In reply to @janflute "I started Forteo last July. I have osteoporosis, extremely active, teach fitness classes, eat perfectly, and..." + (show)
@janflute

I started Forteo last July. I have osteoporosis, extremely active, teach fitness classes, eat perfectly, and am 76. At first I experienced some unpleasant side effects. They all went away. I feel great now and am thrilled to be taking Forteo! I just hope that it will be approved to take for three years, not two.

Jump to this post

@janflute. What were the unpleasant side effects that went away? I’m on day 11 of teriparatide and at first it was going very well. Now I’m experiencing extreme fatigue in the middle of the day and heart palpitations at various times throughout the day. Just wondering if they will go away or if I should be concerned.

REPLY
1 reply
rogerscott8562 | @rogerscott8562 | Apr 22 2:59pm
In reply to @msolomos "How long can I take forteo" + (show)
@msolomos

How long can I take forteo

Jump to this post

Standard length is two years. For most people bone density does not increase after two years. Bone density keeps growing normally for 18 months. Please buy the book Good Bones and read the disclosure for Forteo that you can find on the internet.
My side affects are minor.

REPLY
rogerscott8562 | @rogerscott8562 | Apr 22 3:11pm

I also was concerned about travel. My insurance company will not cover Tymlos, which is similar to Forteo but does not require refrigeration. I get my Forteo by mail in a box with two blue ice packs and lots of foam. The ice packs are still mostly hard on arrival. So, using the ice packs, the box and the foam should keep your Forteo for two days of travel. The box is a one foot cube so travel by plane, train or bus will be awkward. Ask about Tymlos. Tymlos is a more recent product, which makes it somewhat riskier. The book Good Bones compares the two drugs.

REPLY
2 replies
mayblin | @mayblin | Apr 22 4:53pm
In reply to @rogerscott8562 "I also was concerned about travel. My insurance company will not cover Tymlos, which is similar..." + (show)
@rogerscott8562

I also was concerned about travel. My insurance company will not cover Tymlos, which is similar to Forteo but does not require refrigeration. I get my Forteo by mail in a box with two blue ice packs and lots of foam. The ice packs are still mostly hard on arrival. So, using the ice packs, the box and the foam should keep your Forteo for two days of travel. The box is a one foot cube so travel by plane, train or bus will be awkward. Ask about Tymlos. Tymlos is a more recent product, which makes it somewhat riskier. The book Good Bones compares the two drugs.

Jump to this post

Hi @rogerscott8562 here is a link for the thread discussing FORTEO storage during travel:
https://connect.mayoclinic.org/comment/1037672/
Recently I bought another device from Amazon. It’s like a hand held refrigerator (cylinder shape, nor big at all) with a usb plug. If there is any electricity source, you can plug in and keep FORTEO cold. The lid also display the internal temp for ease of mind.

REPLY
1 reply
windyshores | @windyshores | Apr 22 6:14pm

Tymlos also comes in a big box with styrofoam cooler and cold packs and ice packs. I kept mine refrigerated because I didn't do full dose so I needed the pens to last past 30 days. When I traveled I wrapped the box in a hand towel and put cold packs on either side, in a cooler.

REPLY
janflute | @janflute | Apr 22 7:21pm
In reply to @lynn59 "@janflute. What were the unpleasant side effects that went away? I’m on day 11 of teriparatide..." + (show)
@lynn59

@janflute. What were the unpleasant side effects that went away? I’m on day 11 of teriparatide and at first it was going very well. Now I’m experiencing extreme fatigue in the middle of the day and heart palpitations at various times throughout the day. Just wondering if they will go away or if I should be concerned.

Jump to this post

Felt tired and sick to my stomach briefly. Went away soon, and was back to feeling normal in less than two weeks.I love Forteo and would stay on it forever if I could.

REPLY
1 reply
tetris | @tetris | Apr 23 2:29am
In reply to @rogerscott8562 "I also was concerned about travel. My insurance company will not cover Tymlos, which is similar..." + (show)
@rogerscott8562

I also was concerned about travel. My insurance company will not cover Tymlos, which is similar to Forteo but does not require refrigeration. I get my Forteo by mail in a box with two blue ice packs and lots of foam. The ice packs are still mostly hard on arrival. So, using the ice packs, the box and the foam should keep your Forteo for two days of travel. The box is a one foot cube so travel by plane, train or bus will be awkward. Ask about Tymlos. Tymlos is a more recent product, which makes it somewhat riskier. The book Good Bones compares the two drugs.

Jump to this post

The mentioned book is “Great Bones”, by Keith McCormick

REPLY
lynn59 | @lynn59 | Apr 23 9:24am
In reply to @janflute "Felt tired and sick to my stomach briefly. Went away soon, and was back to feeling..." + (show)
@janflute

Felt tired and sick to my stomach briefly. Went away soon, and was back to feeling normal in less than two weeks.I love Forteo and would stay on it forever if I could.

Jump to this post

Hopefully my fatigue will go away soon then!!!

REPLY
ymv | @ymv | Apr 24 7:43am
In reply to @mayblin "Hi @rogerscott8562 here is a link for the thread discussing FORTEO storage during travel: https://connect.mayoclinic.org/comment/1037672/ Recently..." + (show)
@mayblin

Hi @rogerscott8562 here is a link for the thread discussing FORTEO storage during travel:
https://connect.mayoclinic.org/comment/1037672/
Recently I bought another device from Amazon. It’s like a hand held refrigerator (cylinder shape, nor big at all) with a usb plug. If there is any electricity source, you can plug in and keep FORTEO cold. The lid also display the internal temp for ease of mind.

Jump to this post

I use that same container when I travel with my serum tears. It’s very effective

REPLY
1 reply
mayblin | @mayblin | Apr 24 8:16am
In reply to @ymv "I use that same container when I travel with my serum tears. It’s very effective" + (show)
@ymv

I use that same container when I travel with my serum tears. It’s very effective

Jump to this post

There are power bank batteries approved by tsa available on Amazon. So literally we can 1) plug in to outlets in the car, on the plane or anywhere where there is an electricity outlet.. 2) use the power bank! if no outlets available; 3) use the bio gel included without power sources. This literally solves storage problem during many travel conditions. It easily fits into my backpack style purse 👍

REPLY
View MoreView Less
Please sign in or register to post a reply.