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MAC/MIA ?

MAC & Bronchiectasis | Last Active: Apr 30 6:33pm | Replies (24)

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@pfurcht123

Hello, I am New to this forum. I also am not accustomed to blogs and posting. Are there any virtual groups being offered? And cont ED re life with MAC? I am in the process of getting the dx put all symptoms and CAT point to MAC.

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Replies to "Hello, I am New to this forum. I also am not accustomed to blogs and posting...."

The MAC & Bronchiectasis group on Mayo Connect is an ongoing support group, by and for patients and caregivers. We share the latest and best information from the

Here are some places to start reading - follow the links provided for the articles and web sites. Some are easy-to-read and intended for us as patients, but for specific topics and questions, some are very technical in nature. If you have more questions afterward, feel free to come back to Connect and ask - with over 1000 members, you will most often get a response.

I usually suggest people start here, because like "cancer" or "arthritis", a MAC diagnosis can mean many things:
https://connect.mayoclinic.org/discussion/macntm-is-different-for-everyone-treatment-might-be-different-too/

Here is a great article to start understanding the mechanics of MAC (often called NTM):
https://www.ntminfo.org/wp-content/uploads/2019/06/NTMSupplementalGuide.pdf

Here is a discussion topic that contains a lot of helpful links:
https://connect.mayoclinic.org/discussion/resources-for-the-abcs-on-bronchiectasis-and-mac-ntm/

Here is one specifically about inhalers:
https://connect.mayoclinic.org/discussion/is-anyone-else-confused-about-all-those-inhalers/

I hope this isn't overwhelming, and gives you some idea of what to ask next.
Sue