← Return to MGUS Symptoms: What symptoms did you experience?

Discussion

MGUS Symptoms: What symptoms did you experience?

Blood Cancers & Disorders | Last Active: May 15 3:30pm | Replies (72)
Comment receiving replies
@sportedgee

Well, I can ID. I am 69 yrs old male, confirmed dx 3 wks ago and have been having all kinds of weird stuff for the past 2.5 yrs after having a Prostatectomy done. Symptoms are fatigue, night sweats, below normal temp, neuropathy in hands & feet that is intermittent. My Onc/Hematologist just started looking for MGUS Dec 23, as he was watching my blood counts jump all over the map. Did a panel beginning of Dec, 23 and by March 24 had a bone marrow biopsy that confirmed the MGUS dx. The symptoms have not been attributed to anything else, so I would say it is all related to the MGUS starting sometime prior to my prostate cancer diagnosis. Just recently informed that my Onc/Hematologist is leaving the area, so now I have to find someone that can do the proper monitoring and knows about MGUS.

Jump to this post

Replies to "Well, I can ID. I am 69 yrs old male, confirmed dx 3 wks ago and..."
Patty, Volunteer Mentor | @pmm | Apr 25 8:51am

@sportedgee
You’ve certainly had a lot to deal with medically over a short period of time. It’s always hard to tell if symptoms are related to MGUS or to coexisting health problems. With A prostatectomy, there are hormonal changes and 75% of the men who have had the surgery get what I relate to as hot flashes. Go figure. https://www.cancer.net/coping-with-cancer/physical-emotional-and-social-effects-cancer/managing-physical-side-effects/hormone-deprivation-symptoms-men#:~:text=Up%20to%2075%25%20of%20men,as%20gabapentin%20(Gralise%2C%20Neurontin)
But we also know that night sweats can be associated with hematological cancers. So how does one know?
I’m sorry that your hematologist/oncologist is leaving. I always encourage people to find a hem/onc expert who is very experienced with multiple myeloma. There may be a local teaching hospital or cancer treatment facility close to you. That would be a good resource. I looked for someone who takes, his or her time with me and answers all my questions. I want to be on the same page in terms of being as proactive as possible with my MGUS. We don’t have cancer with MGUS, and the statistics are in our favor that we will die of something unrelated, but we do have the potential.
Where will you start your search for another treating physician?

VIEW AND REPLY