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Platelets are too high: What can be done to find root cause?
Blood Cancers & Disorders | Last Active: May 12 6:04am | Replies (38)Comment receiving replies
Sometimes it does take docs awhile to tease this all out. And sometimes the docs know but don't explain it very well, leaving patients not really understanding what they have or the treatment goals. And sometimes the meds take time to work. My platelets got to 800, I took 1 cap hydroxyurea daily for a year and levels were still too high in 600s. The doc added three more caps per week and I have been "safe and stable" in 400s for 5 years. Hugs to you until this gets sorted out!
Replies to "Sometimes it does take docs awhile to tease this all out. And sometimes the docs know..."
You are absolutely correct on doctors taking time before they can figure out the problem with raised platelets. I have been seeing my GP since March this year. Several test done. Today he rang me in and told me CARL Exon 9 Mutation and JAk2 V617F Mutation have been detected in my blood sample. He said i have ET but she needs me to do a bone marrow biopsy before he can put me on medication. My platelets have been rising since 2021 and today reading was 848. She asked me to return in 3 weeks time for the bone marrow procedure. In the meantime she put me on 100mg aspirin.
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It is just frustrating not knowing What the cause is. I sure don’t want a stroke or blood clots