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What are pros of hydroxyurea vs other methods of lowering platelets?

Blood Cancers & Disorders | Last Active: May 16 12:08pm | Replies (17)
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@cdurbin

No but it may be worth checking out. I see my hematologist this Friday. I'm going to speak with her about it. I can't use hydroxyurea due to an allergic reaction when I initially tried it. I'm considered low risk for blood clots & the hightest my plates have been so far is mid 700's so she took me off it & I only take a baby Aspirin for now.

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Replies to "No but it may be worth checking out. I see my hematologist this Friday. I'm going..."
mags17 | @mags17 | May 16 12:08pm

Hi, great to read positive feedback that you were able to go off Hydrea. I had a couple of breaks off from it by chance as I had an accident (injury) couldn't take any medication as my stomach just couldn't even tolerate simple paracetamol for pain relief.
That was back in April 2023 & my platelets were 298.
I got a reprieve from hydrea until next test which was 9 May 23..they went up to 438 yet well within the normal range. Pattern was much the same throughout that year.

My last test was on 25th March this year, platelets were 400 but was left on same dose of Hydrea which is 500mg 3 days per week, am due retest in June. My HCT is within the normal range.
Since I have been taking the Hydrea steadily without a single missed dose, I am exhausted, am falling asleep in afternoons every day now which never happened before, is a fight to stay awake which is extremely depressing. I get about 9 hrs sleep every night, sometimes more. Looks like Hydrea may be the culprit as am not very active. Just wondering if anyone else is fighting to stay awake like this?

I need to highlight this problem at my next consultation as life isn't worth living when I feel so exhausted all the time.
Mags

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