← Return to So disheartened

Discussion

So disheartened

Neuropathy | Last Active: Aug 17, 2024 | Replies (34)

Comment receiving replies
@aaroncush

Sarcoidosis runs in my family. This part of this paper (https://www.ccjm.org/content/85/10/801) describes my symptoms to a T: “Random patterns suggest an immune cause

Symptoms may also have a non–length-dependent distribution that is asymmetric, patchy, intermittent, and migratory, and can involve the face, proximal limbs, and trunk. Symptoms may vary throughout the day, eg, starting with electric-shock sensations on one side of the face, followed by perineal numbness and then tingling in the arms lasting for a few minutes to several hours. While such patterns may be seen with diabetes and other common etiologies, they often suggest an underlying immune-mediated disorder such as Sjögren syndrome or sarcoidosis.8–10 Although large fiber polyneuropathy may also be non–length-dependent, the deficits are usually fixed, with no migratory component.”

My (former) Mayo neurologist knew the author (Dr. Tavee) and agreed after all the testing that I was probably a fit.

Jump to this post


Replies to "Sarcoidosis runs in my family. This part of this paper (https://www.ccjm.org/content/85/10/801) describes my symptoms to a..."

@aaroncush, you might wish to join the discussions related to sarcoidosis. See all here:
https://connect.mayoclinic.org/search/discussions/?search=Sarcoidosis%20
See this one specific to neurosarcoidosis
- Anyone been treated for Neurosarcoidosis? What treatments work?
https://connect.mayoclinic.org/discussion/neurosarcoidosis-2b785b/