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Neuropathy | Last Active: Sep 10 2:05pm | Replies (104)
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Sorry to hear about all this. Like you, I've had all the tests, but everything is basically normal.
I also suspect I may have Sjogren's.
You have different SFN symptoms than I do--I have a lot of pain and numbness, but I don't have a balance or strength issues. It seems like they can't offer a whole lot in terms of medications for SFN. Perhaps physical therapy, with exercises targeting balance and strength could be helpful.
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You are right about PT helping, but I had to stop for now. (Long story) Plan to go back when I think I have something to build on. In the meantime, after talking to my Oncologist,Reumatologist and Neurologist they all agree to let me try Rituximab. I take my second (and last for 6 mons) dose this Tuesday. Oncologist says I should feel better in a few weeks. I will let you know. In the meantime, I also have MDS and am being treated for anemia. Waiting for shots to kick in and releave some of this weakness. If it's not one thing, it's another. Right?!