What to do!
My endocrinologist today through her nurse has let me know that my tests are back & she wants me to go on either Fosomax or
Prolia & she wants my decision like tomorrow! I know I have to get going on something as I am 86 with bad bone density numbers - like 3.6, 3.6 & 3.4. What to do!!!!!!!!
Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
Many people do fine on Reclast. Except for the first two days or so, when some feel fluish.
My doctors worry about my afib and my lower kidney function so am getting a low 20% dose with IV hydration and slow infusion. In 2-3 months. Have done Tymlos for 2 years and some amount of Evenity for 4 months.
Your wonderful too!!
I got a rash when I took Fosamax
I did very well on Prolia and no side effects for many years. When you go off though, after a number of years, it does need to be followed by Reclast infusion for a year or another antiresorptive drug so you don’t lose what you gained. I was fine on Reclast after feeling fluish for first few days. Good luck!
I would probably stay on it as Iam 86 now.
@windyshores , @gently @mayblin i wasn’t sure where to post this. I just received a denial for prior authorization for Tymlos saying the medicine can only be approved if the patient has a diagnosis of postmenopausal women with osteoporosis (my hip is -3.8) at high risk of fracture. I fractured my hip and wrist 5 months ago.
Dexa says 10 year fracture risk not reported because some t-score for spine total or hip total or femoral neck at or below -2.5. My spine is -3.1 and my femoral neck is -2.4.
Should I first talk to my doctor on how to appeal this? Any advice would be appreciated from anyone who has gone through this. Thanks so much.
You could start a new discussion so more ppl can see your message and chime in. You need an endo to appeal and appeal again
There are frax calculators online, different versions, that you can use to calculate your frax risk. But your recent fractures could easily put you in osteoporosis category even you have t scores in osteopenia range. Some endos diagnose op that way. Of course, the circumstance under which you broke your bones counts.
Yes. Make it known to your doc and see if he is able to intervene in some fashion
Thanks @mayblin I currently see a rheumatologist. Do I try to switch to an endo at this point or have the rheumatologist appeal for me since they started the process. The only area I have osteopenia is the femoral neck, which I fractured 5 months ago. The spine and hip are osteoporosis. I fell by tripping over uneven sidewalk while walking in the park.
Thanks @gravity3