← Return to Cerebellar Stroke - experience/treatment/recovery

Discussion
Comment receiving replies
@gammie1952p

I think it is wonderful that your dizziness/vertigo isn’t as bad as it was in the beginning. I’m sure it’s not perfect, but just the fact that it’s not getting worse is very important. I wish I could say that. I think I’ve made a huge mistake by stopping my physical therapy. I took therapy for about 6 months after I was discharged from my rehab facility. After that I stopped doing my exercises because I thought I could just walk with my cane, or swim, and that would be enough. I think I was wrong. I need upper body strength and I need to work on endurance. I’m a little (5 years) late, but I’m going to get back to my exercises that my therapist gave me after I had the stroke. I thought they were too easy, but they gave me a whole body workout. Leg lifts, side steps, marching, arm lifts, getting out of a chair, reaching, (10 repeats). Anyway, I’d give anything to be able to say my dizziness is better. I hope I can get back to feeling as well as I did while doing my daily exercises years ago. I’m praying all of us going through this will find more miracles.

Jump to this post


Replies to "I think it is wonderful that your dizziness/vertigo isn’t as bad as it was in the..."

I too found that when I stopped doing physical therapy regularly, things seemed to go backwards…😒 It’s like everything else for me, I get motivated, then I fall off when I don’t see immediate results! I’m learning the hard way that this stroke thing doesn’t work that way. I’m sure you, like me, beat yourself up for stopping the regular PT. It feels like I worked SO SO hard for that gain and for it to be seemingly for nothing is heartbreaking! We’ll make a pact to start doing something- ANYTHING every single day and not to quit!

Regarding your dizziness/vertigo- I’m sure you’ve tried all the typical things- meclizine, scopolamine patch etc. Those seemed to make me worse! One thing that did eventually help me was vestibular therapy. Not only maneuvers but also eye tracking exercises and techniques etc. Something you may look into. If you’re like me, you’re constantly searching for anything.