What to do!

Posted by guinivere @guinivere, Apr 18 12:04am

My endocrinologist today through her nurse has let me know that my tests are back & she wants me to go on either Fosomax or
Prolia & she wants my decision like tomorrow! I know I have to get going on something as I am 86 with bad bone density numbers - like 3.6, 3.6 & 3.4. What to do!!!!!!!!

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@patjack2

Do you have an Osteostrong franchise near you. I don’t take any medication and this program I uses no medication but is a series of weight bearing exercises.
Just go in and talk to them.

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Have never heard of them. Will have to look them up.

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I’m not trying to sell you Osteostrong. I’m just saying there are other options besides drugs. And I think they are worth pursuing. Good luck to you!

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@ppat4pr

I have no idea what to do. I am 84 with osteopenia. My physician also wants me to go on Fosamax but I have been told by a very reliable holistic chiropractic doctor that it causes the bones to become brittle so that when they break, they actually shatter!

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@ppar4r have you been on any meds before? Is this your first time considering Fosamax? Are your bones close to -2.5 anywhere? Do you have GERD? Do you take calcium and D3? These are all important things to discuss with your doctor, as well as whether you might be able to take a natural route. You can buy the books by Dr. Keith McCormick for advice on that holistic approach.

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Guinivere, good thing you resisted. We're all surprised you weren't offered an anabolic. Maybe she thinks you couldn't give yourself a tiny injection. But maybe she doesn't know you should have an anabolic first.
Don't let her convince you to take reclast. Heartburn was signaled in the clinical trials with both reclast and zometa.
I hope we can have an exchange about Prolia before the two years of Tymlos have ended.
Are you requesting bone markers?

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@gently

Guinivere, good thing you resisted. We're all surprised you weren't offered an anabolic. Maybe she thinks you couldn't give yourself a tiny injection. But maybe she doesn't know you should have an anabolic first.
Don't let her convince you to take reclast. Heartburn was signaled in the clinical trials with both reclast and zometa.
I hope we can have an exchange about Prolia before the two years of Tymlos have ended.
Are you requesting bone markers?

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@gently I have never heard that Reclast causes heartburn.
https://www.drugs.com/sfx/reclast-side-effects.html
Can you share info on this?

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windyshores, it's in the less common side effects.

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Is there an adverse reaction that has not been associated with Reclast. I don't know how to read the incidents except where it says "incidence not known". That I would take to mean rare.

Adverse Reactions
Severe
pancytopenia / Delayed / 5.0-9.9
atrial fibrillation / Early / 0.7-3.3
azotemia / Delayed / 2.0-2.0
uveitis / Delayed / 0-1.1
renal tubular necrosis / Delayed / Incidence not known
renal failure (unspecified) / Delayed / Incidence not known
Fanconi syndrome / Delayed / Incidence not known
hyperkalemia / Delayed / Incidence not known
arrhythmia exacerbation / Early / Incidence not known
seizures / Delayed / Incidence not known
angioedema / Rapid / Incidence not known
toxic epidermal necrolysis / Delayed / Incidence not known
bronchospasm / Rapid / Incidence not known
Stevens-Johnson syndrome / Delayed / Incidence not known
anaphylactoid reactions / Rapid / Incidence not known
osteonecrosis / Delayed / Incidence not known
bone fractures / Delayed / Incidence not known
bradycardia / Rapid / Incidence not known
teratogenesis / Delayed / Incidence not known

Moderate
bone pain / Delayed / 3.1-55.0
hypophosphatemia / Delayed / 12.0-51.0
anemia / Delayed / 4.4-33.0
constipation / Delayed / 6.0-31.0
dyspnea / Early / 5.0-27.0
hypocalcemia / Delayed / 0-22.0
hypokalemia / Delayed / 0-15.0
depression / Delayed / 14.0-14.0
dehydration / Delayed / 0.6-14.0
confusion / Early / 7.0-13.0
hypertension / Early / 5.1-12.7
neutropenia / Delayed / 12.0-12.0
hypomagnesemia / Delayed / 0-11.0
hypotension / Rapid / 11.0-11.0
thrombocytopenia / Delayed / 5.0-9.9
dysphagia / Delayed / 5.0-9.9
chest pain (unspecified) / Early / 1.3-9.9
stomatitis / Delayed / 8.0-8.0
palpitations / Early / 2.6-2.6
flank pain / Delayed / 0.6-2.0
hypermagnesemia / Delayed / 2.0-2.0
iritis / Delayed / 0-1.1
proteinuria / Delayed / Incidence not known
hematuria / Delayed / Incidence not known
tetany / Early / Incidence not known
hypernatremia / Delayed / Incidence not known
hyperesthesia / Delayed / Incidence not known
ocular inflammation / Early / Incidence not known
conjunctivitis / Delayed / Incidence not known
blurred vision / Early / Incidence not known
infertility / Delayed / Incidence not known

Mild
nausea / Early / 4.5-46.0
vomiting / Early / 2.0-32.0
arthralgia / Delayed / 5.0-27.3
diarrhea / Early / 5.2-24.0
myalgia / Early / 4.9-23.0
anorexia / Delayed / 1.0-22.0
cough / Delayed / 12.0-22.0
back pain / Delayed / 4.0-18.2
dizziness / Early / 6.1-18.0
insomnia / Early / 15.0-16.0
weight loss / Delayed / 16.0-16.0
abdominal pain / Early / 0.9-16.0
paresthesias / Delayed / 2.0-15.0
anxiety / Delayed / 11.0-14.0
agitation / Early / 13.0-13.0
musculoskeletal pain / Early / 0.4-12.4
hypoesthesia / Delayed / 2.2-12.0
alopecia / Delayed / 12.0-12.0
dyspepsia / Early / 1.7-10.0
infection / Delayed / 5.0-9.9
pharyngitis / Delayed / 8.0-8.0
influenza / Delayed / 7.0-7.0
lethargy / Early / 5.0-5.0
vertigo / Early / 1.3-4.3
rash / Early / 2.2-3.0
hyperhidrosis / Delayed / 2.6-2.6
ocular pain / Early / 2.0-2.0
muscle cramps / Delayed / Incidence not known
pruritus / Rapid / Incidence not known
urticaria / Rapid / Incidence not known
tremor / Early / Incidence not known
dysgeusia / Early / Incidence not known
xerostomia / Early / Incidence not known
weight gain / Delayed / Incidence not known

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@patjack2

I’m not trying to sell you Osteostrong. I’m just saying there are other options besides drugs. And I think they are worth pursuing. Good luck to you!

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I am definitely open to non drug approaches.

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@windyshores

@ppar4r have you been on any meds before? Is this your first time considering Fosamax? Are your bones close to -2.5 anywhere? Do you have GERD? Do you take calcium and D3? These are all important things to discuss with your doctor, as well as whether you might be able to take a natural route. You can buy the books by Dr. Keith McCormick for advice on that holistic approach.

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I was taking Fosamax years ago, think it bothered my jaw. I have acid reflux, and take Vitamin D3. Thank you very much for your reply. I truly appreciate it.

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@patjack2

Do you have an Osteostrong franchise near you. I don’t take any medication and this program I uses no medication but is a series of weight bearing exercises.
Just go in and talk to them.

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No, I do not but thank you very, very much for your reply.

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