← Return to Does anybody on here have Hereditary elevated Factor VIII?

Discussion
Comment receiving replies
@loribmt

Hello @katelyn56. I know you’re frightened and I’m so sorry you’re going through all of this. I’ve replied several times and given you information about other members who have Factor Vlll. I’ve also given you links to request an appointment with Mayo Clinic in hopes that their huge depth of knowledge and experiences with millions of patients would be able to give you the help you need. I’ve experienced this first hand from my outstanding hematologist oncologist and collaborative team at Mayo.
Click on this link which will take you to the Mayo Clinic’s site to request an appointment. http://mayocl.in/1mtmR63

You made reference last time that insurance might be an issue. There are instances when a disease is beyond the capability of local doctors and insurance will grant approval for an out of state visit to a specialty clinic such as Mayo. It takes a phone call to the insurance provider! It could really be worth your while to get a second opinion, to be seen at Mayo or try for a Tele-Health consult. You won’t know until you try!

Here the link a discussion with other members in Connect who have been diagnosed with High Factor VIII. You’ll meet @heidi2020 @garlamba @jenhaz
https://connect.mayoclinic.org/discussion/high-factor-viii-8-blood-clotting-disorder-and-impacts-to-lifecovid/
Who diagnosed the Vlll for you? This is a familial mutation. Does anyone else in your family have similar clotting incidences?

Jump to this post


Replies to "Hello @katelyn56. I know you’re frightened and I’m so sorry you’re going through all of this...."

This genetic disease is one out of a million. As I said before I do NOT have hemophilia. I have hypercoaguability. It’s like a run away freight train. I appreciate your comments. It does not address what I have. TY

Diagnosed by two hematologist/oncologist. Very expensive genetic testing. Nobody else has it. The parents one or both carry the mutation. Neither parent ever had clotting disorders.