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@j77

I am so sorry that you are going through this.I am going through the same thing right now.I did not test for long covid,but I know it got me.The problem is I got an Iron infusion around the same time and thought that was causing all my issues.I was in really good shape like you and my life has been stolen from me.I had a reaction which I believe now was covid attacking my whole body.I went from walking on the bike trail 8 miles a day to basically being disabled.I just got tested for Cushings as well because of my massive weight gain of over 100 pounds.The test came back negative though.I also have thyroid disease.I have been on 50 mg of synthroid,but they raised it to 75 mg because my TSH was a little elevated.At the beginning of this I was only a little over 100 pounds and I am 5'11.I could not swallow so I could not eat.I thought I was going to die,but luckily my primary put me on steroids which gave me the ability to eat again.I believe Covid does change the cells or DNA.I don't even look like the same person.I use have really nice long hair and now I have what looks like chemo hair.It is like nothing I have ever seen before.I have lost all the strength in the trunk of my body,arms and legs.My upper arms and legs are huge though.I feel like Marshmallow State puffman when I walk.I have had every test you could possibly imagine and they can't find much of anything.One neurologist thinks I haveva metabolic muscular disease,but the Endricinologist does not think so.It could be Metabolic.Nothing in my body is working properly.I have even lost strength in my face for talking,chewing,swallowing and facial expressions.Addisons and some other diseases are low blood pressure and weight loss.I am the opposite.My cortisol is fine too.The only thing they have found is low DEHA Sulfate,low carbon dioxide in the blood and low testosterone.I am in my mid 40s so I am in perimenopause.I am sure that did not help matters.The Doctors just don't have a clue though.It is hard because unless you are going through this yourself people don't understand.

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Replies to "I am so sorry that you are going through this.I am going through the same thing..."

I read your story and am sorry for what you’re suffering with. I contracted Covid in December of 2020 and lost my taste and smell. I’ve had 3 Stellate Ganglion Block injections to try to regain it, but so far only slightly improved. I also began gaining weight before Covid and was diagnosed with Hashimoto’s/Hypothyroidism. My doctor put me on Synthroid 100 mcg and then added Cytomel later on, as I still wasn’t loosing any weight and my Thyroid numbers were high. I began loosing weight and came off the Cytomel, but he put me on a higher dose of Synthroid (112). I am now off Cytomel and he also lowered my dose of Synthroid to 100 mcg again. My weight is staying down and I am able to exercise 3 x’s per week walking 4 miles on the treadmill and doing light weight training. I know that you can begin to add weight to your body when you’re in Perimenopause, but it sounds like something else. You may have Hashimoto’s disease which would explain your weight gain. I began putting weight on in certain areas of my body, like where the flab is under your arms, my back end, legs, belly, but the fat was different, it came fast and furious! If you can, I would as your primary doctor or your Endocrinologist to do a TSH test and test your T3-Free, T4-Free, and your TPO Antibodies. If any of these are high, you need medication. Good luck!

I HAVE EXPERIENCED THE SAME THING. HANDS ARE NUMB, VISION OFF, BACK, LEGS,GUTS HURT ALL THE TIME. MY IRON IS LOW AND MY PHOSPHATE SOMETHING
IS LOW, WHICH INDICATES INFECTION. THEY CAN'T FIND ANYTHING. HAD EVERY TEST KNOWN TO MAN. MY ENDO PUT ME ON OZEMPIC, GAINED 9 POUNDS, CHANGED ME
TO MOJOURNA NOT LOSING AT ALL. EVERY BONE IN MY BODY HURTS GAINED ABOUT 30 POUNDS AND I AM SO BLOATED AND SWOLLEN. CONSTIPATION IS HORRIBLE. NO ONE WANTS TO SEE ME, BECAUSE THEY DO NOT KNOW WHAT TO DO. HURTS ME TO
WALK, SIT, LAY, STAND. I AM NOW DIZZY AND FEARFUL OF FALLING. LOSING HEARING
IN MY RIGHT EAR AND FEEL LIKE CRAP. I CRY A LOT, BECAUSE I WAS ENERGETIC, FUNNY, KIND AND NOW I WISH SOME DAYS TO NOT WAKE UP. I HAD SHINGLES, FLU
AND COVID IN OCTOBER, NOVEMBER AND DECEMBER. I TOOK THE STUPID SHOTS AND STILL GOT THE CRAP. I RECENTLY WENT TO AN ENT FOR MY HEARING AND HE
SAID I HAD SHINGLES IN MY EAR CANAL. I ITCH, NAUSEATED ALL THE TIME AND NEVER SLEEP ANYMORE. THE VACCINE REACTED ON ME
AS I HAVE HASHIMOTO'S AS WELL AND THEY TOLD ME IT WAS SAFE. SUCH A LIE!

So sorry for what you are going through.