@csalter Cassie, When I was evaluated for TOS at Mayo Rochester it was in the Vascular Lab in Gonda and I think Dr. Shepherd was the consulting thoracic surgeon. They tested me with tiny blood pressure cuffs on each finger and moved my arm and neck in various positions measuring the drop in blood pressure. My spine surgery consult was Jeremy Fogelson and the neurologist he had me consult was Dr. Bartelson from the spine center. Dr. Bartelson also tested me by listening to the pulse in my neck which disappears when I turn my head because of TOS. If TOS in a non surgical case, myofascial release with a certified therapist can help. I have done MFR work for years and self treat at home from what I have learned. If you search for myofascial release of the Mayo website, you'll find a couple of chiropractors listed as doing this in the rehab center. I don't know anything about that as my Pt is local where I live.

Since you have C1 twisting, you could start with Dr. Fogelson as he knows about thoracic outlet syndrome. He has authored papers on Bowhunter's Syndrome which is a similar issue of C1 twisting and staying like that. You may benefit from some physical therapy. Dr. Fogelson is highly requested because he is so good and gets a lot of requests because I talk about him on Connect from my experience.

If you have more questions I can answer, please ask. (and lucky you for working at the best place for medical care)

Jennifer