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How bad is a diagnosis of Polycythemia Vera?

Blood Cancers & Disorders | Last Active: May 18 12:08pm | Replies (30)

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@onthejoedock

Joe is starting jakafi tomorrow. He had bad reaction to Hydrea so stopped it and he's better from side effects and now going to try the jakafi. I hope he will get some energy soon. His so tired all the time. I hope he doesn't get side effects from this pill. Dr starting him at 5 mg twice a day. Glad to hear it works for you thanks.

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Replies to "Joe is starting jakafi tomorrow. He had bad reaction to Hydrea so stopped it and he's..."

I have been on jakifi 25mg 2x per day for past 5 months with no side effects except constipation. I have CEL, so not the same diagnosis, but same medication. Good luck. I hope the jakifi works for your husband.