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Liver transplant - Let's support each other

Transplants | Last Active: 17 hours ago | Replies (1572)

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@rosemarya

@mkhogan - Greetings today from a rainy central Kentucky! I want to say that I totally agree with your assessment that it would be awesome if more became aware of the benefits connecting with others.
I received my transplant in 2009, before Mayo Connect existed, and like you, I discovered it during one of my own on-line searches since there were no support groups in my area. I have enjoyed being a part of the conversations on Connect for over 10 years, and have proudly watched it grow as technology has become more available to the world. When in Rochester during my annual appointment, I have seen Mayo Connect Brochures at information desks and in the waiting areas, including some in transplant areas. Due to space availability and multitude of topic specific brochures, these are not placed everywhere. Have you seen the kiosks in the main lobby area? Mayo Connect is on it! And more recently is on the Mayo Clinic Patient portal. I think a brochure might be included in the take-home information, too.

During my time on Connect, I have been blessed to meet and interact with organ transplant patients from all over the world. I like to think of all us sitting around a kitchen table with cup of coffee or tea and chatting while getting and receiving support from each other. So, @mkhogan, I am inviting you to pour a cup of coffee or tea and join us. What is going on with you and your precious liver? What is something that you learned on Connect that is most helpful for you? Any updates you would like to share since your most recent comments?

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Replies to "@mkhogan - Greetings today from a rainy central Kentucky! I want to say that I totally..."

Thank you for your response. I have been enjoying connect. I've learned so many things and it has definitely opened up options to me for meds and treatments doctors don't always talk about. Give me something to have in my bag, do yo speak when I talk w doctors. Sometimes frustration is doctors don't seem to bring up all options and nice for me to have questions I can bring yo them. Especially since you sometimes onlysee them once yearly. I am doing good. I have some portal hypertension even with new liver but it's controlled. Feel good every day and active and traveling lots. I have much to br grateful for