Scott22 @scott22

In reply to artemis1886
I retired 10+ years ago at 60. I retire January 2014, May 12, 2024 I had a right total hip replacement, replacement was fine but when I started outplacement PT on my second visit the PT Supervisor who was overworked damaged the muscles that hold the replacement together. I have suffered ever because all the tears scared over. My orthopedic surgeon who performed the procedure is a very good friend. He was really upset because there was nothing he could do to fix the damage. A year later June 30, 2015 I had 3 levels of ACDF C4-C6 performed. Again the orthopedic surgeon and neurosurgeon were close friends. So far all the surgeries were performed by friend and all of us were connected as we all served in the Army. May 17, 2022 I had Lumbar Decompression L2-L3, L4-L5 Lumbar Laminectomy, Facetectomy and Foraminotomy Vertebral Segment. My first EMG test was done in April 2022 results were mild Demyelinating and Axonal Sensorimotor Polyneuropathy. One year later I had a procedure Posterior MIS TLIF L2-L3 One Level Fusion. Oct 5, 2023 I had my second EMG test and was diagnosed with Sever Demyelinating and Axonal Sensorimotor Polyneuropathy. The Neurologist who performed the EMG test became my Neurologist and said to me right after the test he was very concerned with the results. The first available appointment to receive a consultation with him was January 15,2024. He order a complete neuropathy bloodwork panel and had all of them done at the hospital. The complete results weren’t available until April 2024 but as the results came in I was made aware. The only result that was positive was the SED (Erythrocyte Sedimentation Rate)
Normal rate is 0-15 mm/an and result was 25 High. April 2024 my Neurologist told me my condition was Idiopathic, cause unknown. I am not even going to list the other 3 surgeries land 2 procedures I had. My Golden years are not very Golden. Anyway I completely understand what you have explained because I has earned the right to understand. I also didn’t tell many people about the challenges I had because I always believed that 80% of the people don’t care, 10% are happy your having issues and only 10% care and those people are family and best of friends. I never told my 2 daughters and 3 grandchildren about my current challenges. But my wife told them 6 months ago and my grandchildren asked me directly so I could explain to them. We are very close and we text each other often and they share with me things they don’t even tell their parents. Because you will never know who I am, I am not concerned about breaking the rules that we all agreed to, what ever we talk or text about is confidential with each of them. The 3 of them think they only have that special relationship with me. So now that I told you all about me because you have earned the right experiencing many of the same challenges. So are you the 80%, 10% or the 10% because now we are friends. Scott22

There are specific tests for CIDP, like spinal fluid and electro muscular tests that are pretty definitive. You should IMO, demand more testing.